Diffuse large B-cell lymphoma is a type of non-Hodgkin lymphoma (NHL). If you're...
Follicular lymphoma is a type of non-Hodgkin lymphoma (NHL). If you're suffering...
Mantle cell lymphoma is a type of non-Hodgkin lymphoma (NHL). If you're suffering...
T-cell lymphomas are a type of non-Hodgkin lymphoma (NHL). If you're suffering from...
I am new to this group. My partner had NHL with a tumour in his chest area. He had RCHOP and then in grew quite quickly so moved onto RICE and then moved on to have an auto SCT. It was touch and go for a while but he managed to pull through.
Fast forward 4 years and he has relapsed. He was told previously that if he does relapse there would be no hope of a cure and that they could only prolong his life with chemo. We have two small children together and he is 34 years old. I’m holding onto hope at the moment but It feels with keep getting bad news. He goes for scans next week but at this stage it’s in a testicle and he has swollen lymph nodes in his neck. Looking for anyone that may have been through a similar situation or offer any advice.
Hi Sarah, the is always hope and at this point I would suggest 2 types of treatment to discuss, one is an allo transplant where he gets the cells from a donor and the second is I believe the Christie in Manchester are starting CAR-T cell trials, other hospitals may be involved to.
Is he being treated locally or at one of the top cancer hospitals ? if not its worth seeking a second opinion and a transfer to one of the top hospitals.
The will be challenges ahead but do hang on to that hope and don't let anyone snatch it away.
we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
Hi Sarah, good to see you have found us, I have little or no connection so can't say much but is see our John has been in contact.
Totally did not click that it was you who had posted on the SCT forum so it sounds as though I had not talked with you before - sorry.
Keep on pushing the doors and in reality there is not much that can be done or said until he gets some clear information.
Mike - living my new life and trying to make a difference
'Some journeys take us far from home. Some adventures lead us to our destiny' C. S. Lewis
SCT NHL T Cell Community Champion
thank you so much for your reply. We have just found out that he has testicular cancer not a relapse of NHL. In my mind it’s a positive- reason being there’s still hope of a cure now. It’s in the early stages and doesn’t seem to have spread so we are extremely fortunate. So here we go on another Cancer journey but I’m sure he will beat it again.
deleted as misread
Hi I don't know a lot about TC but beatable sounds good, so everything crossed thats the case
I am sure you and he will get lots of good advice from the TC group
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