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Myeloma is a cancer of plasma cells in the bone marrow. If you're suffering from myeloma, or know someone who is, join this support group.

Myeloma and phn

Posted by

Hi all it's now been over 5 yrs in remission for me ,the only problem I've got is PHN  nerve damage all around my right hand side torso ,which I got from shingles 4 yrs ago I take 8 paid. Killers a day for it,bloody painful 24/7 ,my sleep pattern is so bad because of it ,now we've got 12 weeks of lock down to contend with ,I will be 65 on Sunday 17th,once am on a time I would have been a pensioner ,but have to wait till next year now,I've not worked for 6 yrs now but managed to keep busy the last 7 weeks only 5 to go I hope 

Posted by

Hi Alan,

It is good to hear from you again, although I’m sorry to read about the PHN nerve damage, I imagine that must be really difficult to live with. I sometimes get nerve pain (mainly on the left side) and it can be excruciating, but it is short-lived for me so I am definitely feeling for you. Have the medical teams been able to offer any suggestions as I imagine the sleep problems will compound how you are feeling?

How are you doing myeloma wise? I sincerely hope everything is ok on that front.

I don’t think the lockdown is helping myeloma patients psychologically speaking. I started a separate thread on this. I read that NHS England is doing more research on stratifying deaths to date with a view to being more precise about where the specific risks are. I really hope this results in some relaxation of the rules for everyone on the shielded list as I really don’t think it’s sustainable for too much longer.

Anyway, good to hear from you again and happy early birthday for Sunday!