We understand that people with cancer are worried about coronavirus.
Here is the
We will update it regularly.
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
I have MGUS, and I would really appreciate it if someone could tell me if I should be self isolating. I have a hospital appointment on 7the April to discuss my latest hip xray that shows a shadow. Thank you.
Welcome to this corner of the forum, although I’m sorry for the reasons you have to post. I think this is a really uncertain time and a lot of people, including myself, are not entirely certain how to respond.
I am waiting for my medical team to get back to me, but I think they are likely to say all myeloma patients, regardless of stage or treatment are higher risk, since the cancer is in plasma cells, which create antibodies, so by definition something has gone wrong with that important infection fighting process.
I am not a medical expert, but from what little I know about MGUS, it relates to excess proteins in the blood. I’m sure there’s still things to learn about how and why MGUS turns into myeloma, but it only happens for a small % of people, so I’m thinking there is not an absolute connection. Therefore, it’s entirely possible the advice for myeloma patients does not apply in MGUS. Do you have a medical team that monitors you and could you check with them re:what they think?
Wishing you all the best
What is a Community Champion?
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: