We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Myeloma

Myeloma is a cancer of plasma cells in the bone marrow. If you're suffering from myeloma, or know someone who is, join this support group.

Face masks, COVID-19 and Multiple Myeloma Patients

ale2104p
Posted by

I am sure you have all heard about how vulnerable we are especially if we are currently on treatment. Have you been given any specific advice with respect to eating face masks especially at this time. It appears the experts are saying that wearing them is a useless thing to do.

- Should we ditch the mask and just observe the other hygiene recommendations? 

- Wear the masks because we are in a risk group?

greg777
Posted by

Hi Ale2104p,

Thanks for raising this important topic, I for one am interested to know what other myeloma patients are being told. I have received no guidance from my medical teams although I am currently in remission and on 6 monthly check-ups, so I wasn’t expecting to receive any. Even though ours is a cancer of the antibodies, and therefore inherently you would think we were at high risk, I haven’t really considered myself to be high risk, and haven’t really done anything different to what any normal person would do to avoid the virus. I don’t know if I’m being naive or actually given my circumstances, what I am doing is fine. I’m sure if the disease is active or you’re currently undergoing treatment, I’m sure the advice is different. I’d be interested to read what others think.

Greg

Janet500
Posted by

Hi I have a different cancer but I do wear face masks and gloves outside.Its good a hand hygiene but the people sneezing and coughing in to my face thats why I am wearing the mask.I am on treatment and the immunity is very low I am not willing to spend even a 1 day in the hospital.

I also have antibacterial hand wipes in my handbag so I can wipe them often.

SLW1960
Posted by

Hello I too have been wondering  about this as I'm sure we all are! A year ago I was about to return home following SCT and a year on I'm in remission and feeling fine.

My thoughts are very much with those patients undergoing treatment at the moment and in particular anyone undergoing SCT. I think I would be feeling very vulnerable..

I happened to have my four monthly  check with my consultant last week. I asked him whether I should postpone my April appointment for Zometa in order to avoid attending the hospital. He didn't seem unduly concerned about the situation. He just advised waiting to see how this all unfolds and follow the hygiene guidelines like everyone else. 

I have to keep telling myself that I went through all the treatment etc in order to live a normal life again as far as possible and not to wrap myself in cotton wool and live a solitary existence!

SUEW1960
greg777
Posted by

Hi all,

This link has been very helpfully put up in other blood cancer groups and I thought some of you might find it helpful in terms of myeloma and Coronavirus.

https://bloodwise.org.uk/blog/coronavirus-and-blood-cancer

Greg

greg777
Posted by

All, 

I thought I should share the below guidance that was put up on the Myeloma UK this morning. 

https://www.myeloma.org.uk/news-and-stories/covid-19-information-hub/

Keep safe everyone!

Greg