Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
It went quite well really and the haematologist was very thorough. We all agreed that as hard as the sweating is to cope with we would continue with the Revlimid on a lower dose initially and also a staged return to Dexamethasone. The ribs have to be left to heal alone. The MRI and the other tests are due to take place the first week of January. The Haematologist was pleased hubby has started on the antidepressant. We just have to keep trying but oh it’s hard now. We’ve had some decorating done this week and also our new furniture arrived for the dining room so I’ve been busy making everywhere look festive ready for the nephews and their families coming to lunch onSunday. I went to see our seven year old great nephew in his school play on Tuesday and today I took mum out for a sandwich and tomorrow the great niece and nephew are coming for an hour to decorate their Christmas cakes. I do hope you are doing OK and that you are looking forward to your Christmas. Please do take care and if it’s OK we’ll keep in touch eh? June x
DearWill6 I’m so glad to hear everything went well with the consultant, good communication is the key to everything and reduces anxiety. Good luck with the tests in the new year and I hope you have a lovely Christmas. Update me when you have more news. I hope I have been of some help to you both.
Oh dear Jane never doubt the power of your concern for others. I must admit to being tearful this morning after another long night and hubby feels desperate this morning so it means the world that someone is thinking of us. Bless you
DearWill6 just checking in on you both and to wish you all the best for the new year. I hope you managed to have a lovely Christmas despite everything that’s going on. How are things with side effects at the moment any better ?all is well at this end and had a nice Christmas with husband who cooked the dinner, and I survived to tell the tale !
Hello Jane and happy new year to you and yours.
Our Christmas was Ok really but still marred by the pain hubby is feeling 24/7 bless him. We went to visit the great nephews and niece (plus their parents of course) which was lovely but we only managed a couple of hours out and then back to bed. He’s had a change of meds but still no relief so tomorrow I’m contacting the team to ask for some help. We are going to hospital in the morning to see the endocrinology team for tests so hopefully that will help. Yesterday our eldest nephew celebrated his eighth birthday and spent the night with us whilst the rest of the family partied. He is such a precious young man and spreads joy wherever he goes so it was a wonderful evening. Hubby slept through most of the evening but we woke him up at five to midnight to watch the fireworks on TV. Such memories are so precious. I’m glad your Christmas dinner was good. Thank you so much for keeping in touch. Take care.
DearWill6 June, I’m glad to hear you had some nice experiences over Christmas despite everything that is going in. It’s lovely to be around the children but they have so much energy they can exhaust you just by being in the same room with them ! I hope you get some clarity soon on why your husband is experiencing almost constant pain, I think doctors sometimes forget that not all patients respond to therapy in the same way and it’s not adequate to just brush people off with, oh it’s just side effects. Please keep in touch and let me know how you get on at the hospital.
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