Mesothelioma

A place for people affected by mesothelioma to support one another, ask questions, and share their experiences.

End of treatment.

Marhen
Posted by

2 years ago my husband was diagnosed with Mesothelioma.  He had 6 chemo sessions which worked remarkably and life pretty much went back to normal, then it returned. They put him on a course of chemo which after 3 sessions it was stopped as it was was not working. And they have stopped all treatment.  I am finding it increasingly difficult to mentally cope.  To look at him it’s hard to believe he is ill as is still playing golf.  He has a drain fitted and is draining out fluid once a week.  Nobody has explained what to expect next  To be honest I am scared,  is it normally like this.   

GerryC
Posted by

Hi Marhen, so sorry to hear about your husband.  It should not be the end of his treatment, not if he is physically active and reasonably well.  He should be referred to one of the trials that are going on.  There is a full list of them on the Mesothelioma UK website.  You have a right in the NHS for a second opinion.  Why not ask to be referred to one of the specialist Meso centres eg. Glenfield Hospital, Leicester.  Prof Fennell there is leading a number of trials, one of which may be suitable for him.  If you contact Mesothelioma UK they will give you the advice you don't seem to be getting at the moment.  Do get in touch with them either call 0800 169 2409 or info@Mesothelioma.UK.com to email them.

Best wishes.

GerryC

TomJack
Posted by

Hi Marhen

I am from the North East which has a relatively high number of Mesothelioma patients compared to other parts of the country, but even the Oncologists up here are not aware of all the treatments/trials . Yes by all means get a second opinion, which I intend to do when my Mesothelioma starts to grow again (I'm currently on my 4th cycle of Chemo with a very slight reduction in my Pleural thickening after my second scan) I have been told that Professor Dean Fennell (Mesothelioma specialist) from Liecester is happy to give patients a second opinion via the NHS. Good luck for the future, Tom

Marhen
Posted by

Hi Gerry 

Thank you for your advice Today we went to Southampton General Hospital as Henry had a phone call reference a trial 

They have offered him a trial starting on June 10th. We are going to chat with oncologist on Thursday in Swindon about it.  He,s got a 

whole load of paperwork to read.  It’s one of those that I believe it’s between 4 people 3 will be given the drug by drip feed but the 4th will 

be given a placebo which is I believe just saline  but you won,t know whether you,re receiving the trial drug or not  

Margaret