Melanoma

A support group for anyone affected by melanoma to come together, share experiences, and ask questions.

Recently diagnosed with stage 1B melanoma

Rower1
Posted by

Hi all,

New to the group after being diagnosed on Thursday with stage 1B melanoma 1.1mm depth.

The mole was on my lower right leg which I came concerned about in May to be fobbed off three times by Gp’s. Luckily I persevered and was seen in October and had it removed.

My consultant was very positive and said that the cancer has all been removed and a WLE will be performed and mentioned the SLNB which I have opted for. Having a 3 year old and 14month old I would rather know!!

The consultant said it is highly unlikely that the cancer would spread but I can’t help but think a what if? Which I am guessing is perfectly normal.

I have been checking my groin area an today I could feel a lymph node. When you google it (worst thing ever) it says you shouldn’t be able to feel them! I don’t know if this is because I’ve been prodding it or it is normal to feel a small lump.

I am scheduled to have my further surgery within 6 weeks but unfortunately with Christmas I have a feeling this may not be the case.

Anyway, I was looking for positive outcomes for SLNB for stage 1B melanoma as I came out of the appointment feeling positive but since then I do have the odd panic.

Thanks all

Jo 

Jo 
debs45
Posted by

Hi Jo

I was diagnosed with nivoid melanoma 2.1mm on Wednesday which came as a total shock!

I’m opting for the sentinel node biopsy. Due to see plastic surgeon on Monday but hoping it’s not many weeks to wait for surgery! I share your thoughts with Christmas in the way!!

I’m getting paranoid about the lymph nodes in my arm pit but can’t feel anything just keep thinking it’s sore but that’s only happened since I was told so it’s probably all in my head.

If a lymph node is enlarged it generally feels like a hard pea and doesn’t usually move.
I’ve come to the conclusion I can’t worry about that right now as if it is in my lymph nodes I can’t change that so I’m just causing myself more worry until I know for sure. 

Keeping my fingers crossed for both of us!

Deb

latchbrook
Posted by

Hi Jo & Debs, a very warm welcome to the online community and I hope you don't mind me replying to you jointly.

It's perfectly normal to think that anything wrong you notice with your body means that the melanoma has spread. We've all done that and sometimes still do! As you said Jo, sometimes keep prodding your lymph nodes will cause them to swell and you should be advised that checking them once a month when you check your skin is enough. Obviously, if in between times you do notice a swollen node then get in touch with your skin cancer nurse specialist (SCNS) and she will arrange for you to get checked over by your consultant.

I was diagnosed with melanoma Stage 2a nearly 3 years ago and have had both a WLE and SLNB with no further sign of melanoma. If either of you want to know anything about these ops then I'm happy to share my experiences with you.

Let us know when you have the dates through for your ops.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?

Rower1
Posted by

Thanks for the reply both. 

I have moments where I completely forget about it and then moments where I fear the worst.

My consultant said the the chances of it spreading whilst in the early stages is very low and highly unlikely so I need to focus on those words!!

Just wang the surgery done ASAP so I can at least enjoy Christmas with my little ones.

Jo 
debs45
Posted by

Hi

thank you for such a warm welcome and reassuring message.

It is very hard not to jump to conclusions but I acknowledge it’s destructive until I get results back. I agree keep prodding lymph nodes has probably made it sore!!

Its really reassuring to hear you are still clear 3 years later! Really pleased for you.

I work as a Palliative Care specialist nurse so I have a good understanding of procedures etc but just sharing experiences is really helpful.

debs45
Posted by

Jo

Obviously no guarantees in life but hopefully stage 1 will have a positive outcome as such early stage. So fingers crossed for you.

We have to try and hold on to the information until we know any different. Just one step at a time.

I really hope we get the surgery done quickly.

Deb

Diane1951
Posted by

Hi  @Rower1  I don't want to be a party pooper here but I would advise you to talk to your skin cancer nurse about what you can feel in your groin. Back in 2016 I had a mole removed from my leg, had the WLE and the SLNB in my groin and was told it was all fine, no spread. Fast forward to this summer and I felt a pea sized lump in my groin. I had a PET scan and my surgeon said it showed one "active" node  & he advised me to have all the lymph nodes removed, Have had that done so keeping fingers crossed that it'll all be ok now. Please get it checked out.

Diane

Rower1
Posted by

Diane,

Thanks for the advice. I think I will ring her and ask. I know they said all the cancer was removed but you hear so many stories about it already spreading that I can’t help but think the worst.

Jo 
latchbrook
Posted by

Hi Debs

Yes, it's almost exactly 3 years ago when I was told that I had melanoma. I didn't get my WLE and SLNB done until February as Christmas, New Year and surgeon's holidays got in the way but I'm pleased to report that everything is still fine.

If the node is still sore and swollen come Monday morning then it would probably be a good idea to give your SCNS a call. You could also use the opportunity to see if they have got a date for your ops yet. In the meantime try not to worry too much.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?

Sailor2
Posted by

Hi Rower1,

A lymph node popped up in my groin around twenty months after my WLE was done.  I called my cancer nurse who arranged an appointment for me to be seen by a surgeon within a couple of weeks.  A quick puncture biopsy at the apopointment was done and the results fast tracked due to my history. I was subsequently operated on and had two lymph nodes removed.

I hope your worries pan out to being nothing at all, but you are right so be vigilant and to get checked out.

Let us know what happens.

Take care,

J

Don't wait for your ship to come in, swim out and find it!

Rower1
Posted by

Mine feel exactly the same on both sides. I am full of a cold and sore throat as well which doesn’t help. 

Can I ask at what stage were you diagnosed?
My consultant only mentioned mine was 1.1mm and didn’t say anything about ulceration etc?

I think I worked myself up so much for the results that I have made myself really run down. Doesn’t help when both kids have been really poorly as well

Thanks  

Jo