Melanoma

A support group for anyone affected by melanoma to come together, share experiences, and ask questions.

Worried/confused

195600qdg
Posted by

my daughter had a mole removed on her face 3 weeks ago. Reading peoples thoughts on here have been very very helpful. We all knew it was melanoma because  of the shape etc and her gp was convinced.  Well she’s been waiting for the result but she got a phone call today telling her to see a cancer specialist tomorrow morning. This has totally scared the life out of me.  Mainly because on this site despite all the positive things, I read that you only see an oncologist if the cancer has spread. This has so confused me. How would anyone know yet if it had spread?  She has no pain or hardness in lymph nodes. No other symptoms. I’m terrified now.  Please please someone reassure me. 

KTatHome
Posted by

Hi , I was wondering about how you worded your post, that she had a phone call to see a cancer specialist, I was wondering if she is to see a skin cancer specialist nurse, who work closely with the dermatologist and become the patients keyworker to liaise between all the medics that we might have to deal with and deal with follow up of melanoma and other conditions that don’t spread, or wether they actually said oncologist.

It’s nearly tomorrow morning so I’m hoping it’s not as sinister as you think. I don’t know the answer to your question though from personal experience as my melanoma diagnosis was back in 2015, but there is now a choice of having treatment to avoid a spread depending on the biopsy results. 

Do tell us how things and I’m sorry I can’t be of more help.

KT 

195600qdg
Posted by

Thanks so much for you reply. I was worried no one was going to answer. Yes it could be a specialist nurse. It’s all so vague and getting answers is very hard work. It was just a call to say come and see a cancer specialist. This is at a different hospital she had the mole removed. I suppose it could just be the results. They never said anything else. It’s all so worrying but as she’s had no other tests I don’t know how they could tell yet if it’s spread. I’m going off my head here   Thank you again 

KTatHome
Posted by

Hi , no matter how much the GP or dermatologist think it might me melanoma, it isn’t until the biopsy results come through that they will know for sure, as there is a condition that looks very much like melanoma. The biopsy result gives the staging or size and from that they have to follow guidelines of what should happen next re regular checking of skin and lymph nodes. As you say if she hasn’t had an ultrasound or ct scan or sentinel lymph node biopsy they can’t suspect a spread, and you shouldn’t either because at this stage without the first biopsy results you don’t know if it’s just something that looked like a melanoma, or a melanoma that has already been fully removed and didn’t go far enough down into the skin layers to spread. 

Its a horrible time waiting for results, I’ve had my fair share of that this year. They like to give results in a face to face meeting and I hope your daughter has someone to go with her to help her listen to any explanation and think of any questions, which might be a simple as what happens next, how soon will that be, why is that necessary, if I have further questions who do I contact. I know when I got my results I just stopped listening as I tried to process everything, it was a good job my husband was there, and the skin cancer nurse was brilliant in making me feel supported while waiting for further answers. 

Good luck again, I hope tomorrow goes smoothly for you both.

KT 

195600qdg
Posted by

Thanks again for your very helpful information.  It’s all such a shock at the minute. I think they’re going to give her results at that appointment. It’s odd it’s at a different hospital that she had the mole removed. I will keep everyone posted. You are all so helpful and encouraging. 

195600qdg
Posted by

She saw a nurse not a doctor just as was suggested. They are going to do a wider incision to make sure they’ve not left anything and check lymph nodes. They are 90% certain they’ve got it all but best to be cautious. It was 1.3mm. Thank you all again