Lung Cancer

A support group for anyone affected by lung cancer to come together, share experiences, and ask questions.

SCLC: 7 years post treatment

Uglow
Posted by

Hi I had a lobectomy, found that part easy to get through hardly any pain to speak of and medications was great. Wound healed quickly. I took arnica before operation. You will be fine. Sending healing wishes to you. 

Xxxx

Gs38
Posted by

Thank you Wednesday now confirmed doctors are concerned about the level of fibrosis I have as well as the cancer

I am not concerned I have total belief in my own ability to promote and drive forward my healing process and come through this: I have friends, loved ones and people like yourself who I know will be standing alongside me metaphorically holding my hand as I walk through the valley of the shadow of death back into the light of life and I promise I will support and hold the hands of everyone that asks for or needs my help

Bless you

Uglow
Posted by

Thank you so much and I will be with on Wednesday xxxxx

Maz2018
Posted by

Hi Kegsy, thankyou so much for sharing your wonderful news. I have SCLC. When I was first diagnosed I was scared (Still am) but doing better then I was. I was diagnosed September 2018 . I have since had 5/6 sessions of chem, my 6th is on Friday the 22nd Feb. So far its responded well.. I then will need some radio therapy, I think to my brain and chest.  Saw my oncol yesterday, he is pleased at my progress but did say if mine as gone to sleep then they cant guarantee the time it will wake up :'( . I am 51 and healthy normally.  Seeing your post as given me hope. I have young grandchildren that I want to see grow up.. I dont want them asking that question "Where's nana Marie?"  I sre hope I can follow in your footsteps. Hugs Marie xxx

Kegsy
Posted by

Hi Marie

I was 53 when I was diagnosed and, like you, had no other health issues (which is always a bonus).

Yes it is highly likely that you will first have radiotherapy to the lungs, which will then be followed up approx. 6 wks later with radiotherapy to the brain.  Don't worry the radiotherapy treatment is painless but can make you tired. The brain radiotherapy is a precaution as chemo isn't as good at getting around the brain as it is for the rest of your body. As for your SCC 'waking up', I could happily punch your Oncologist! Please do not assume that will be the case; think positive!

I am glad that my post has given you hope, as this is the very reason I do my 6 mthly update posts for others with SCLC.

I will keep looking over my shoulder to make sure you are following me, and I wish you the best possible outcomes.

Kegsy x

"If you are going through hell, keep going" ; Sir Winston Churchill
Humphreybrm
Posted by

Hi Kegsy,  hope you do not mind me jumping in and asking a few questions.  I had 3 tumours and part of the right lung removed last June and I was diagnosed as having SCLC.  I was not fit enough after the op to have any tratment and my last ct scan in December showe'd the right lung clear but at least 3 new lumps in the left lung the biggest being 5mm. I read from other sufferers about having radiotherapy to the Lung and brain as like an insurance policy and wonder why I am having nothing.  I am pretty fit now and walk at least 2 miles everyday. My weight is steady so cannot think why I am just going through the motions. I have a CT scan booked for the 5th March  and a follow up appointment for the 3rd April. I have been messaging Gina who has been brilliant but as she admits her cancer was NSCLC. Gina did suggest I ring the experts and I may do that after your response. Again apologies for jumping in. 

Mick

Mick H
Kegsy
Posted by

Hi Mick

Of course I don't mind you joining this thread as my updates are always posted for the benefit of others diagnosed with SCLC.

In terms of the radiotherapy treatment for SCLC, the brain radiotherapy is usually the preventative treatment (insurance policy) where there is no sign of spread. Radiotherapy to the lung is mainly used as direct treatment of the cancer, either on its own for small tumours or with chemo for the more extensive tumours.  Both the chemo and/or radiotherapy can be extremely tiring which is probably why you didn't receive either after your op. That's the thing with this damn cancer lark, you do have to have a defined level of fitness to deal with the treatment.

The positive aspect is that the right lung is now clear and the  three lumps in the left lung are very small. My guess is that your medical team was giving you time to recover from  the op  and you will have a treatment plan put in place after they get the results from your next scan.  If it helps,  I recently accompanied an elderly neighbour for  radiotherapy treatment to a small lung tumour and the radiotherapy has seen off the tumour and the lung is now healing itself.

Stay strong and keep up the walking, especially now that the weather is improving.

I wish you the best possible outcomes.

Kegsy x

"If you are going through hell, keep going" ; Sir Winston Churchill
Humphreybrm
Posted by

Thanks Kegsy,  I appreciate your comoments and I will let you know what happens over the next 6 weeks. Love walking and if it is in the sun all the better. 

Mick

Mick H
Maz2018
Posted by

Hi Kegsy, thankyou so much for your reply. You sure do boost my thoughts. Sending hugs xx

Gs38
Posted by

Hi all 5:30 Thursday morning had opp lower left removed got out of bed by 5 yesterday just got into chair now starting to exercise lungs with voldyne sucking machine feel fine so thanks to all for holding my hand it obviously worked now pushing on with exercise and looking at new diet will post more when rested a bit 

Uglow
Posted by

Gs38

fabulous. I remember the machine that puts air into your lungs.  So glad op went well. When your ready a little walk helps too. I could only eat little and often but recovery was fairly quick. Keep going you will feel better soon. Xx

Gs38
Posted by

Thanks just starting to get sore now eating and walking around

Uglow
Posted by

Hi, How are you today Iv been thinking about you xx

Kegsy
Posted by

Hi Uglow

I too very much hope that Gs is doing well.  However, perhaps it would help you and others on here to follow Gs's progress if you set up your own thread? 

To be honest  I don't like my threads being 'front page' for too long, so setting up your own thread would allow this 'SCLC: seven years post treatment' thread to gently fade into the archives.

Thank you

Kegsy x

"If you are going through hell, keep going" ; Sir Winston Churchill
Uglow
Posted by

Hi how you doing! Xx