Newly diagnosed 43 y/o T4N0M?

Hi  I'm also a newbie on here. In process of being diagnosed.  Have had xray, ct scan and petscan. Haven't met yet with Oncolgy team but have spoken to respiratory consultant. Told 2.5 nodule suspected cancer, lit up on petscan on mid right lung, lymph nodes inflamed, small nodules left lung and looks like metastasis on shoulder bone.  Such a shock as feel really well, no cough, chest pain etc. Nearly all bloods good apart from a couple slightly high. Only thing I had was shoulder pain. It's frightening isn't it but reading some of the wonderful stories on here gives you hope.  Hope you get on ok

Yip me too got lung cancer diagnosed 15th August.  Had know blood coughing just heart palpations which led to Pet scan.  My tumour was advanced, the size of 50p on right lung,  had first chemo 26 August had results 3 weeks after chemo.  Tumour shrunk to size of 20p.  I have small cell lung cancer which oncologist says more & likely keep coming back so just need keep getting check-ups.  Iam happy it's shrinking it's a positive start for first chemo cycle.  Good luck everyone.

Hi Salgo,

Sorry you find yourself here too. Yours is much smaller than mine, hopefully this is a good sign. Have you had a biopsy yet?

which of your bloods were elevated? Would be interested to hear as I had bloods in April then again now and some elevated in both - be interesting to see if there is a theme between us- potentially help others in future if patterns are recognised.

like you mine started with shoulder pain probably this time last year but I was often carrying 13kg bag on one side for work so I put it down to that, eventually got a backpack so I dismissed it, it occasionally returned but was explained by just having backpack on one side. In August after a cold I noticed tiny spec of blood in phlegm so went straight to Gp and that’s when tests started, but that has since cleared up with anti biotics so I am symptom free again ‍♀️

I had my EBUS today and they are satisfied lymph nodes are ok

still pending biopsy they are hoping Guys in London agree a robotic broncoscopy for me  the waiting makes me nervous of growth and spread. Have you been biopsies as yet?

Hi Jimmy

Thats a super fast treatment plan - had you already had your biopsy by 15th August?

What area of the country are you in?

size of a 50p actually sounds like they’ve caught it quite early and the chemo having such great results is fabulous, when will your next cycle start?

Have you changed your diet/exercise? I am trying to avoid all processed foods/ sugar/ sugary snacks - I’m a real cake lover so it’s not been easy  and eat more greens

Waiting for biopsy. Luckily  going to be sent to Papworth so really pleased about that. I haven't actually seen anyone yet. Had a phonecall from respiratory as that's where they've decided primary cancer is. Had xray, ct scan, pet scan and bloods. Asked fir bloods to be done again so loads of results.  Most of the bloods were normal, only ones elevated were kappa light chains, higher red blood celll count, ca125 raised, urine creatinine slightly low, immunoglobulins,  IgG slightly high and IgM high, serum c reactive protein slightly high. There was nothing really outstanding.  I feel well in myself, no other symptoms apart from shoulder/arm pain. Visit to GP was in July and ball has been rolling to put me on 2 week tracker following xray results. Would like to see a consultant face to face but think that will happen after biopsy.  Like you, keep reading stuff and now have so many questions. Apparently from what I've read, metastasis to the clavicle is quite rare because of limited blood supply in that area. How sure are they that it is metastasis? Could it be misdiagnosed or am I just hoping? .  Really want to get biopsy done so know where I am and next steps. I'm thinking of having an mri done privately as doesn't look as if that test is on their list and that might say more about what is going on with shoulder/ arm. Sorry such a long text. Just feel a bit in limbo as was originally put under department of unknown primary originally so today having to have colonoscopy even though pet scan showed nothing! Know it's good to check everything out but not looking forward to this!!

Yes had Biopsy  mate,  It's painless asking as they give you sedative. Bloods seem fine.. well they haven't told me otherwise.

I had Colonoscopy just before I was diagnosed with cancer,  if it rains it pours). No signs of cancer in bowels had pet scan but no spreading of cancer anywhere.   Like getting punched in the stomach when you get the news it's seems your life's ending, but that's not the case,  they have very good treatment these days.

It has just been agreed I can have the robotic Bronchoscopy at Guys  so grateful, just got to wait for a date

Hi, Iam In Glasgow,  consultant says the bigger the tumour the the more effective treatment will be.  I had fast heart rate because tumour was against my windpipe so that was a godsend 8 got early signs.   I excersise now.. less processed foods ,  I think most importantly is the excersise will keep your heart &lungs stronger to fight the little pescky ****.