Hello, firstly sorry this is so long, but as normal I have a lot to say and most of it is probably waffle but please bear with me.
I have recently been diagnosed with gall bladder/bile duct cancer (which according to my initial ultrasound report is the size of a fist - 10cm x 9.4 x 9.4cm), and also have Type 2 Diabetes (which I was controlling with Metformin).
In October I went on a strict weight loss diet (in competition with my husband, who had to lose a stone and get his cholesterol down after his quadruple heart bypass last summer) and I have lost nearly 4 stone since then. I am now just under 15 stone (6ft tall) and am just below the middle of the Overweight level on BMI charts. At my heaviest I was actually 22.5 stone!.
I feel like I have shrunk my stomach and can only eat small amounts of strangely, mainly dairy foods - full fat milk and cheese. I do have some fruit but am struggling with vegetables which cause bloating and abdominal discomfort which is completely the wrong way round as it should be fatty foods that would be causing the symptoms!.
Despite this my blood sugars are continually high and my Diabetes Nurse is considering starting me on Insulin. I fear my tumour may be affecting my pancreas's ability to produce any insulin, rather than my gall bladders ability to manufacture and release bile to digest fats. I have an oncology appointment on 19th June to discuss the results of my biopsy and the chemotherapy options he has chosen.He didn't have all the results when I saw him 2 weeks ago. Obviously the position and size of the thing means it is inoperable.
Until recently I haven't had any symptoms from my 'Alien' which has been identified through blood tests, an ultrasound, a CT scan, MRI scan and Liver Biopsy. I now have pain in my right shoulder and left shoulder blade which my Macmillan Nurse believes may be due to stretching of the liver capsule.I still have no signs of jaundice or eye discolouration.
Oddly I have not been concerned about the cancer at all and have been really calm and sleeping well - I put this down to taking a certified good quality CBD oil. I am more concerned that my blood sugars are so high when I am having so few Carbs. I am also worried that my Oncologist wants me to stop taking CBD oil when I commence Chemo as some friends have found it helps alleviate side effects and I won't want to lose the calming effect it seems to be having on me now.
It does seem unnatural that I am so calm, I have not cried once although being a former Nurse I am aware of the implications of such a large invader, especially if it is affecting my pancreas.
Is there anyone else out there who is battling to control their blood sugar whilst seemingly eating just 'fresh air;' and having chemo? Any tips appreciated - there are so few foods I can tolerate and even then only small amounts 3 times a day.
Oh, and I forgot to mention, I also have Multiple Sclerosis, so keeping calm and preventing relapses is an additional concern!
PS. Its my 59th birthday today (15th June), and I really hope I will still be here to celebrate the Big One next year!)
Hi I will Survive this and a warm welcome to the online community although I'm sorry you've had to find us.
I can't help with your questions, as I didn't have this type of cancer, but I noticed that your post had gone unanswered.
Could I suggest that you also post your question in ask a nurse and one of the specialist cancer nurses will aim to respond within 2 working days.
P.S. Happy belated birthday!!
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