Liver cancer

A place for people affected by liver cancer to support one another, ask questions, and share their experiences.

Primary Liver Cancer HCC

cornwallhcc
Posted by

Hi

I am new to this site and hoping someone can help.  My partner has recently been diagnosed with liver HCC (about 3cm in size).  He has cirrhosis of the liver which was caused by unknown Hep C caused by a tattoo which he has since beaten.  Due to his history he gets regular scans to see all is ok...and this time it wasn't.  We have only ever met with a specialist nurse who keeps changing which isn't helpful but 4 weeks ago we were told about the cancer.  They advised that the consultants would get together and discuss his case and he would then be going for a liver ablation and that should get rid of it.   NOPE...got a call today to say that this was now not an option as the tumour is so near to his gallbladder (he has gallstones which he recently had to be admitted to hospital with) and the surgery would be too risky.  So the option we were then given today by the nurse was TACE treatment and for him to go on the transplant list!  We have a meeting at last with his liver consultant on Wednesday to have our first face to face consultation.  What i don' understand is why can't they just take his gallbladder out and then do the ablation, is that not less risky than a liver transplant??  Can we go down the route of live liver donation?  His daughter and also other members of his family are prepared to do this.  You can probably tell we are feeling completely lost as to what this all means and we don't seem to get any firm answers from anyone.  Other than his liver history he is fit and healthy, does that help?

HELP

latchbrook
Posted by

Hi

I'm sorry to see that nobody in this group has been able to help with your questions after I suggested that you join this group. It could be that the people who have the experience you need haven't seen your post yet.

While you're waiting to see if you get any replies you could post your questions in the ask a nurse section and one of the specialist cancer nurses will aim to reply within 2 working days.

I know that you have a meeting with the consultant on Wednesday but it would be good to go armed with this information. Can I suggest that you write all your questions down as I can guarantee that you won't remember what you want to ask when you get there. You might also like to take a look at this information on treatment for liver cancer along with these suggested questions to ask.

Do come back and let us know how it goes on Wednesday.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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csmoocher
Posted by

Hi

My husband has also been diagnosed with hcc, about a 7cm tumour. He was diagnosed on 12th March and has still not received any treatment. He too was due to have liver resection to cut away the tumour and get rid of the cancer. We were told on the day he was admitted for surgery, 2nd july, it was no longer an option, with no explanation just to come back to talk to the consultant in a few days. It turns out that the tumour is too close to a main artery/vein and he wouldn't have enough liver left to survive, so Tace is the next option. They hope to shrink it so he can be a candidate for transplanation. They won't consider a transplant if the tumour is over 4cm. We have no idea why smaller makes a difference. I now find myself having to comfort the man I love who constantly talks about ending his life as he has nothing to look forward to. Our 2 children also hear this. My dad died from hcc in 1995 and never got to see any of his children marry or have children so my husband is very aware of what can happen. I need help in wanting to know how to help him and should it be taking this long to receive treatment. We feel the hospital are letting us down by their lack of urgency. If they had operated sooner it wouldn't have grown. He has no symptoms.

latchbrook
Posted by

Hi and welcome to the online community

I'm sorry to hear that your husband has been diagnosed with liver cancer.

To stand the best chance of getting a reply from other members of this group it would be best to start your own discussion asking the questions you want answers to. To do this you will need to join this group by selecting 'join this group' which you'll see near the top of the page. Once you've done that select 'start a discussion', give your thread a title and then, to save you typing this response out again, copy and paste it into your thread.

You might also like to join the carers group as it's a safe and supportive place to share your worries and emotions.

Clicking on the link I've created will take you to that group where you then need to choose 'join this group' on the page that opens. You can then post a question or introduce yourself after selecting 'start a discussion' and respond to existing posts by clicking on 'reply'. 

When you feel up to it, it would be really useful if could pop something about your husband's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?