Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Why would they treat the secondary before the primary Kidney cancer

lynne_mc1
Posted by

Hi there, my dad got diagnosed with seconday bone cancer before they found found the primary kidney cancer. Dad is being treated for the bone cancer (- in his leg, bottom of spine, hips, top of spine, neck, and rib) with pallative radiotheropy. He is now starting his third week of treatment. We were told at the time of his diagnosis, about 3-4 weks ago now, that he would also be refered to a kidney cancer specialist doctor to treat the kidneys. After asking about this appointment a few times now, we are still waiting for it. Considering the kidney cancer is stage 4, is it normal not to be treating it quickly. I understand that it is not curable, but surely it is still spreading. We have been told that both kidneys are affected, one tumor in the left kidney about 4cm I think, and two smaller tumors in the right kidney. To be honest, I sometimes feel very unsure about the whole process as I find a lack of feedback from the doctors to be consistant. Just to add to the whole confusion, when we first met the oncologist, he was reviewing my dads file and also casually mentioned a few other areas the cancer had spread to (don't really want to name them here as dad doesn't know this but if you can help me and need to know p.m me). I think my main question here is has anyone had the same, is the order of treatment normal, what happens next, we are not really even sure of prognosis. Thank you Lynne 

Jools
Posted by
Sorry to hear about your Dad Lynne. I think you need to chase up the appointment - however they often like a gap between radiotherapy and chemotherapy to allow the body to recover so that may explain the wait - but to confirm whether this is right you might want to ring up the cancerbackup nurses here on freephone 0808 800 1234 for a chat - they are very good and knowledgeable. I am a stage IV Breast Cancer patient and my first line of treatment was simply hormone therapy, then radiotherapy before chemo came into the picture. Also I think pain relief is high up on priorities when deciding what to treat first - which may be why they have gone for Radiotherapy first . I hope that was of some use to you but I urge you to ring the cancerbackup nurses too to confirm what I said. Good luck with everything Lynne - we are here for you so keep adding to your blog and we can see how you and your Dad are doing, Best wishes, Jools xxxx

There is no better excercise in the world than to reach down and lift someone up

lynne_mc1
Posted by
Hi Jools, thank you for your reply. I will ring the cancer back up nurses, that is a really good idea. It really helps to know people like yourself are on this site helping others whilst dealing with a serious illness themselves. I really do appreciate your advice and kind words. Hope all goes well with you. I love your quote about excercise it is really nice. Take care and good luck, Lynne x
Pete.
Posted by
Hi Lynne

I think the Docs are probably thinking about pallitive care in your dads case. The primary tumour at stage 4 is probably less of a concern to the Drs and their treatment plans now that they know its stage 4. They could be thinking on the lines of relieving and soothing the symptoms of the RCC without view effecting a cure, and the secondries may be the primary targets to ensure your Dads comfort and lessen the load on his body.

I know exactly what you mean about the feedback from the medicaI profession, but try phoning your Dads consultant, although you'll probably get the secretary and aski for an explanation. I did in my case and he was fine about it.