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Hi everyone i am just writing for my friend...her husband had his Kidney removed 3 weeks ago they told him after scan that he had slight spread to his lung anyway he was recovering after surgery and doing well and was home..last night he had a seizure and was brought to hospital they did a brain scan last night and said the cancer has spread to his Brain..they are getting in touch with another hospital on Monday and he will be having more scans...at the minute they know nothing...im wondering if any of you have any positive stories to give my friend any encouragement in the meantime i have posted on this site before and found it helpful.. thanks x
I had a brain met in 2013, discovered after an MRI coz I was having headaches.
I had cyberknife treatment on it. Three sessions of 20 mins.
I was on Pazopanib from then till 2016, when I had a treatment gap till 2019,going back on it in Oct 2019 when another met was found on my omentum. Everything had shrunk in Jan 2020 at my last scan. I await my next scan.
I also know of others who've had gammaknife on their brain mets, eg irishrambling who's doing really well with her follow up immunotheraphy.
Thanks so much for your reply i really appreciate it thank you
You're welcome Oli 7
Yes, the immunotheraphy has worked wonders on the lung and liver mets. Alas there is some spread in the brain but the mets that were gamma knifed in November have gone so we know I respond well to the treatment.
I have had bloods done today and have phone appointment with brain surgeon tomorrow. I'm all packed in case he has a last minute slot like last time and so cat is sorted etc and if he says 'Come in.' off to Sheffield I will go. My oncologist keeps telling me not to worry as there are lots of options yet. But not worrying is hard. I now have 9 courgette plants growing away and need to be here to harvest them. But don't think I'll be sleeping much tonight.
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