I had my kidney out 5 years ago and have been fine. October last year I had a fall and broke my hip so was taken into hospital. Whilst they were operating they noticed a mass in my other hip, I was sent for scans over Xmas and early Jan they called me in to tell me that there was cancer in my left hip and my right pelvis. Apparently these areas has shown up on my scans for the last few years but nothing was mentioned to me. I was taken into hospital within 2 weeks for a hip replacement, which confirmed that It was cancer. They have now passed me over to the Oncologist who phoned me last week to start me on Pazopanib this was a phone consultation and just told it was cancer in my pelvis and this is the treatment I needed . My head is all over the place at the moment as the side effects sounds really bad, and living alone I feel really afraid. I have not signed the paperwork yet as had a lot going on the past week, I just dont know what I am doing. If this virus were not around and in lockdown my daughter would have come home and gone to see the consultant with me. Sorry for the long post
Hi all, just back from the hospital, I had a Cystoscopy today. Thankfully all ok, couple of stones in bladder, but not causing any problem so leave well alone. It wasn’t the most pleasant experience, but no where near as bad as pancreatic endoscopy. This has been a terrible 6 weeks or so, but hopefully after the 23rd July, I will know what’s what, and then get on with it.
Good luck for 23/7
Gragon, just to let you know I had my scan on Friday, now just an anxious wait to see oncologist on 23rd to get result. I don’t know what would be better no change and watch and wait, or a change and get treatment started. The waiting is terrible.
Hi Ian436, waiting is definitely the worst. I now have both CT and MRI on 23/7 then a phone appointment on 30/7 with scan results. Even waiting a week is bad enough.
Sue, I hope we both get good news on the 23rd.
I hope you have good results on the 30th the waiting is the worse.
I had a phone appointment on Monday just gone he didn't say much just that the cancer was stable in my pelvis the annoying thing was that he did not offer me Radiotherapy just said only option was the tablets 3 weeks later I asked another consultant who said it was an ideal place to have radiotherapy so I think me and my consultant dont really get on after I went behind his back and asked for different treatment. Go a CT scan now in 3 months, my only concern is I have a really bad back, and just hope the ct scan picks up the back as well .
Thanks Ian436 n sukiuk.
Do you know what's giving you the bad back sukiuk?
not a clue but my back is really playing up
Maybe it'd b a good idea,to get the CT scan brought forwardsukiuk, so they can look at your back then?
I had a scan 3 weeks ago said the radiotherapy had worked on my pelvis but no mention of my back so fingers crossed
You might want to have a chat with your GP about your back. It is really easy sometimes to blame everything on cancer and forget that there are other things that can happen to us as well. Your GP will also have access to your reports from the hospital so would be able to check and see if your back was mentioned at all.
All the best,
Thanks Gragon for pointing that out
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