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Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Coming to terms and any advice for the future, to and not to eat and drink .

Evolutionfq340
Posted by

Hello everyone, 

I have just joined this group and hope to learn and even help if possible. A little about me and why I'm here. 

In October last year I had on and off pains in my side, I eventually attended my gp who said they are sure I have kidney stones but sent me for an ultrasound which I attented January 19th. The following day my gp rang to say a tumour has shown up on my ultrasound. I attended appointments and Ct scan which confirmed my worst nightmare... A 9cm tumour in my kidney. To say I was in shock and deeply upset to discover at 44 years old I have cancer. On March 19th I was fortunate enough to have my operation with the Corona issue around. I am now recovering. I wasn't given much information due to the fact they wanted me out of the hospital due to Corona. I have days where I'm emotional and days I feel ok. I'm walking approximately 2 miles a day now. If anyone has been in my position I was wondering if I have to eat and drink certain things or just eat healthy?

Any advice or experience you can help me with coming to terms would be appreciated. 

Kind regards 

Franco 

Franco 
Joncol
Posted by

Hi Franco I had a radical nephrectomy sixteen months ago. My consultant told me to drink two litres of fluid a day and to cut down on protein as it’s processed through the kidneys. I managed to have move my intake and it seems to have worked. My remaining kidney is working well. Like you I found walking to be beneficial and it seemed to really help with pain. Hope this is of use to you.

Jane
Evolutionfq340
Posted by

Hi Jane

Thank you so much for replying. I am having 2 litres of liquid as you are, I just don't know what a correct amount of protein is per day etc. What do you mean by managed to have move my intake? 

Kind regards 

Franco 

Franco 
buttercup01
Posted by

Hi  Franco,

I had a nephrectomy 15 years ago and wasn't given any dietary advice at all. Luckily, I'm still here, despite various mets over the years and thanks to Pazopanib.

I don't know if it makes any difference that I'm a vegetarian, so don't have to process any animal protein. Hopefully  will come back to you on that one.

Btw, kidney cancer's a slow grower compared with many other cancers- thankfully. You may find , now you've had surgery- that's an end to it all. I do hope so.

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Evolutionfq340
Posted by

Hi there 

Glad to hear you are still here to help people like myself. You are very kind. You are correct, I just don't know what to do with myself, do I go on as I was, eating, socialising, etc. I have no idea why I've called Joncol Jane either, one of those days. 

Franco 
Joncol
Posted by

Hi Franco a typo! Should have been halve my intake. So instead of a chicken breast I cut it in half, I rarely have cheese, only eat half a tub of yoghurt etc. Hope that is clearer. Please call me Jane

Jane
Evolutionfq340
Posted by

Hi Jane, 

I understand and thank you so much. 

Franco 

Franco 
Jo300
Posted by

Hi Franco

I had a radical nephrectomy 6 years ago - I was the same age as you! Afterwards I just carried on as normal - totally balanced diet, no more or less of anything in particular and I was told that was perfectly fine. Told to drink lots of fluids - not necessarily water - just so long as it was fluid it was fine. I'm not a water drinker - so I had squash and my go to tea and my surgeon was totally ok with that. My kidney function has been consistently OK since.

Walking is great exercise so that's perfect.

For future I'd say work on your core if that's important to you. Mine had always been strong and I lost it totally - not surprising given the op. I didn't work on regaining the same level of strength but expected to do the same things and ended up slipping a disc as a result - now that's painful!

Lots of luck to you with your continued recovery!

Jo
x
Evolutionfq340
Posted by

Hi Jo, 

This is so good to hear as I'm also using a cordial in my water. I've been told different things regarding food and drink. Some say lower my protein intake and more starchy carbs and just as you are some say carry on as I was but does this include alcohol? I have no idea not that I drank much to start with. I am a keen golfer and hope to be able to play again in the near future once lockdown is over.

Thank you so much for your advice Jo. 

Franco 

Franco 
Jo300
Posted by

Alcohol is fine. It's all about moderation. Your body will tell you if you overdo it so you'll find out what you new norm is. Again - I asked about alcohol specifically and was told yes fine - in moderation.


I'm now on pazopanib and I find I can drink G&T / beers but white wine - and prosecco / champagne specifically kills me.

Hope that helps!

Jo
x
Evolutionfq340
Posted by

That's a great help as everything you have said I plan on doing. That drug has never been mentioned to me, have you been on it since op? 

Franco x 

Franco 
Jo300
Posted by

No Franco

My cancer came back unfortunately in 2016, but I knew at the time of my op that was possible as the tumour had spread into the fat. I started on the Pazobanib then. At the time it was the first line drug of choice - but that has changed in the last year particularly - so it's not something they might have mentioned as future options if by any chance you might need them.

At the moment after a nephrectomy the most common route is simple follow up scans which reduce in frequency over 5 years. 

Jo
x
Evolutionfq340
Posted by

Oh no Jo, sorry to hear that. Hope you will be ok. 

Franco x

Franco 
Jo300
Posted by

Thank you Franco

I am totally fine! I've been completely stable for nearly 4 years now and plan to be for a lot longer!

Jo
x
Evolutionfq340
Posted by

Brilliant news. 

Look after yourself and thanks again for your help. 

Franco x

Franco