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Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Recent diagnosis

Gragon
Posted by

Hi ,

I'm pleased to hear that your mum is recovering OK.  Funnily enough I did have a post operative bleed and was back in hospital for seven days, longer than I was in for the operation.  I left feeling much worse as well.

I think most people hear after about 6 weeks.  They will let you know about the tumour.  I can't remember if they told you which type of kidney cancer your mum had but you will want to know which it is.  They should also give you the stage and grading of the cancer.  There is a link click here to the Kidney Cancer UK website which I think give the clearest explanation of what this staging and grading means.  Your mum will be scheduled for a scan about 6 months after the operation to look again once things have settled down and see how she is doing.

All the best,

Gragon x

SamiW89
Posted by

Hi Gragon,

Thanks for your quick reply and sorry to hear about your bleed, glad you got recovered though.

I dont think we have been told which it is all we have been told is that is was a T1a N0 M0 which I believe refers to the sizing and if it had spread. We were also told that it was just confined to the kidney hence why she just had the partial removal.

I am really hoping all the signs are pointing to it being a low grade tumour but I guess you can never quite know until you know haha! All we can do is keep our fingers crossed!

Hope you are well Gregon.

Thanks

kickitvic
Posted by

Hi. I’ve just been through all this myself and everything sounds similar. I found out my biopsy results after 2 weeks. I had a biopsy before the main op and they said stage one but this upgraded to stage 2 after it was removed. Most people seem to go straight to the operation but because I didn’t fit the statistics for kidney cancer they wanted to be sure it was cancer before they touched mine. 

SamiW89
Posted by

Thanks for replying Kickitvic! Yeah mum went straight to the opz just had chest scan and other scans prior. Just so hoping its stage 1!!! What does stage 2 mean for you now? Xx

SamiW89
Posted by

Hi all, so mum had a letter to say she would have a phone consultation on Tuesday, we are presuming this will be the results of what was taken away during her op. Nervous is an understatement!

What kind of things might we be expecting to hear, what is a good result? What questions should mum be asking during the call?

Thanks so much for your support. X

buttercup01
Posted by
Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
SamiW89
Posted by

So mum has just had her consultation call after her op and I think it's the best outcome we could've hoped for. It is low stage 2, very clear margins, down to 3% chance of it spreading and very confident all has been removed. Consultant says her next scan may be in 3 months apparently is the norm after the op (?) but he said it may be pushed to 6 due to good outcome. Very very relieved and hope we can just forget about it now, at least until the next scan!!!! Thank you all for your responses x