Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Gamma knife tomorrow!

irishrambling
Posted by

I saw the surgeon about my brain mets today. There are three. Two tiny and one 1 cm. Long discussion about treatment pros and cons. Mostly pros! For once on this journey. Then he said there was one question I hadn't asked and I said 'What?' and he said 'When?' So I said 'Probably next couple of weeks?' and he said 'What about tomorrow.' There then followed 2 hours of frantic activity. Arranging lift to Sheffield for 7am. First friend I asked said yes. Problem at 4pm was trying to fix someone to pick me up, drive me home and stay the night. So they offered me a bed which I have taken. So I get zapped tomorrow. 

I've tried on the head thing and think I can cope with it. Got home at 6pm and leaving in less than 12 hours. Has anybody got any tips and suggestions? 

Do I wear my normal clothes or do I need no metal on me? I've packed snacks and drinks. Have Kindle and books and magazines. What else?

buttercup01
Posted by

Congrats  on getting it done so soon!

As they do a double contrast MRI to decide on the treatment plan, you'll need to be metal free.

They will probably give you painkillers before they attach the frame to your head. You may need some more  later on when they wear off. You may have to ask  for  some if you're on a ward. Don't suffer in silence!

Glad u can stay there overnight. Give u time to chill afterwards. I stayed at a nearby hotel then got a taxi back from central  London the next day.

As well as Kindle n books etc you could take some music/ relaxation  CDs or downloads. Hospitals are notoriously noisy at night -  and always too hot!

Be thinking if u tomorrow. Good luck

Sue x

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
buttercup01
Posted by

Hi .how r u since going home!.I hope u r well n taking it easy?.Sue xx

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
irishrambling
Posted by

I'm dressed and lying on sofa watching property porn on tv. I certainly know somethings been done to my head! Had to travel from Sheffield to Chesterfield hospital after discharge yesterday as my appointments are at different hospitals. As soon as I have a bit of bounce back I'm going to push to get things more streamlined.

Was very high yesterday because had 24 hours of extra steroids so was anticipating a bit of crash today.

A couple of friends have braved rain and floods to call in.

Overall got more positive stuff from gamma lot than I've ever had from my oncologist who hardly makes eye contact with me. I'm thinking of writing piece about lack of touch in social and NHS care. My husband has been jn care 4 years, and because he's always in a padded wheel chair or bed, which is too narrow and high for me to get into to hold him when he's terrified by his dementia demons, all I can ever do is hold his hand or stroke his head. This makes me sound touchy feely, which I am not. But it's something I've become more and more aware of during my own treatment. So managing to do bits of research and frame thoughts.

Anticipating a better day tomorrow. Have got a couple of pork chops in the oven to have with salad. 

Thank you for asking. They can't find me a woman here who's got kidney cancer to talk to,  so being on the site and talking to others is very important during the lonely dark evenings.

buttercup01
Posted by

So glad the folk on this site  can help u in the lonely dark evenings.

I'm often awake in the wee small hours  if u need to chat.

There may well be someone on the Kidney Cancer UK website as well? I keep meaning to join them.

Get the feeling there are perhaps more men  with kidney cancer, tho not in this group come to think of it.

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
irishrambling
Posted by

I've been told that it's 3 men to 1 woman. Think that is part of problem with oncologist. When he asked me what I wanted my future to be, I said 'A very merry widow!' It want down like a lead balloon.

buttercup01
Posted by

Not a very supportive oncologist ..

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
irishrambling
Posted by

I have tried endlessly to join but Facebook for some reason won't let me. It says illegal use. But I've never used Facebook!

irishrambling
Posted by

I have tried endlessly to join but Facebook for some reason won't let me. It says illegal use. But I've never used Facebook!

Joncol
Posted by

If you have a smartphone add it as an app. 

Jane