Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

current status

alfiesnana
Posted by

Hi All

a month ago I was diagnosed with cancer in my right kidney.

since then I have had MRI and CT scans and a cystoscopy which thankfully showed that my bladder and urethra were clear.

just this week, I was admitted to hospital to have a biopsy performed.

following the procedure I was told that 5 biopsies had been taken and a stent inserted into my kidney as my tumour is bleeding and has been blocking my kidney causing it to swell.

The worst part for me is now having to wait 2 weeks for the results of the biopsies to come back. I already know that the kidney has to come out so really don't see the sense in waiting. The doctors now know where the tumour is and that it is Tertiary Cell cancer which apparently is one of the rarer forms of cancer, so why all the waiting around?

It's driving me nuts!!

Has anyone else had the same experience? Maybe you could shed some light on this for me? None of the doctors are telling me anything. Just giving me letters or copies of letters sent to my GP which I am then having to decipher with the help of this and other cancer help websites.

latchbrook
Posted by

Hi

I can't help with your questions, as I didn't have this type of cancer, but I noticed that your post had gone unanswered.

By replying to you it will 'bump' it back to the top of the page where it'll be more easily seen. I'm also going to tag this groups' Community Champion into my reply as she may be able to help you further.

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 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?

Jo300
Posted by

HI Alfiesnana

Sorry to hear of your diagnosis. It sounds like what you're going through are pretty normal time frames. Although I didn't have a biopsy or stent before my op, I had the other tests you've mentioned. The guidelines give a 60 day timeframe from a prelim diagnosis to surgery / treatment. When you're waiting it seems like an awfully long time, but in the big scheme of the life of the cancer it's not at all, it's tiny.

Do you have an op or pre-op date yet?

Jo
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buttercup01
Posted by

Hello alfiesnana, as Jo says  the timeframe isn't really too long, but I know any waiting is the pits.

(Sorry for not answering your post earlier, it slipped thru the net.)

Let us know when u have a pre-op or op date pls. Once you've a treatment plan in place that'll help with the waiting.

If u need help with deciphering the letters, can u ask your GP or cancer nurse specialist about them?. Consultants are now obliged to send u copies of letters to your GP but not to " translate" them, more' s the pity!

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
alfiesnana
Posted by

Hi Jo300

I keep telling myself and my family that it's 'only been a month' but when the pain is at it's worst it feels so much longer

I don't have a date for my op yet but if the 60 day timeline is correct then it should be before Christmas.

Thank you for giving me this much information................it's more than any of the doctors have given me!

My discharge letter states that the pain relief I have been given is for one week only so my GP's surgery is reluctant to prescribe any more. I think my GP is going to have a fight on her hands! If this pain isn't gone in the next 2 days, I will be camping on her doorstep 

Jo300
Posted by

I think your GP is being a bit daft. It’s short term for goodness sake.  I’d be down there too!! For what it’s worth I find over the counter cocodomol a bit better than paracetamol if I run out of my prescribed pain meds 

Jo
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