Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Partial nephrectomy: follow up & histology

William999
Posted by

Hi, I had a partial nephrectomy two weeks ago and have a follow up appointment to discuss histology etc in two weeks time. The surgeon warned me that he thought he'd removed a cancer not a benign tumour.

Apparently I am seeng a specialist nurse not a consultant. I think she is going to explain any follow up check etc which I think run for several years? 

Should I be insisting on seeing a consultant? What should I expect in terms of follow up? What questions should I be asking?

Also for some months now (before I even knew there was a problem with my kidney) I've had aches in my lower stomach. I've always put this down to having IBS but now wondering if it's more than this. Could I/should I be asking them to check this, do a CT scan etc?

All advice gratefully received. Thanks

buttercup01
Posted by

Hello william999, welcome to the kidney cancer group, where you'll find lots of support from ppl in a similar situation to you.I think you'll be seeing a urology nurse specialist, but u could ask to see the surgeon/ oncologist instead.

Follow ups are usually by CT scans every 6 to 12 months, tho may be more frequent if there are particular things they want to check up on.

Take a list of questions with you n someone else to write the answers down if possible, then u can refer to them later.

The sort of questions are the ones you've mentioned here, eg about aches in your lower stomach. A CT scan would show if it was something other than IBS.

I get the feeling chere are a lot of what ifs behind your post 

Easier said than done I know, but try n focus on the here and now, rather than what ifs and deal with things as and when they come up.

Hope that's helpful

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.