My husband has been diagnosed with this. It has metastasised into his lungs, poss bones and lymph nodes.
To say we are devastated is an understatement. He is my world. We also has 2 11 year old sons.
This is the 5th time in his life that he has had Cancer (Prostate, Hodkins Lymphoma).
We have an appt with our local specialist cancer hospital this week and are hoping for a miracle quite frankly. We are holding onto the hope of a clinical trial or immunotherapy.
I cannot fin anyone else on here with this. I know it is a rare cancer but good god, is there anyone??
I feel like we have simply been sent home and left...………
It is almost surreal, yes it is clear my husband is ill but he is still managing to do things, albeit in small doses, but what are we to do?
Hoping & praying for a miracle.. Is there anyone else on here with a similar diagnosis?????????
Welcome to the community, tho it's a"club" none of us wants. to join.Are these all primary cancers your husband's had?!
Given your difficulty finding someone else with your husband's diagnosis, u might want to try the helpline on 0808 808 0000, 8am to 8pm or pose your question in the "Ask a nurse" section on the site.
Good luck with the appointment this week. Let us know how u get on.
Thank you for your reply.
Yes they are all primary cancers!
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