Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

complex cyst

dom1969
Posted by

Hi every body

Ive just popped over from the bowel cancer forum having had this 2 years ago.

Any way on a ultra sound for a hernia yesterday they said I have a slightly complex cyst on my right kidney, cause for concern or not please?

thanks in advance

dom

buttercup01
Posted by

Reckon u need more info re cyst, " slightly complex" not helpful. Can u ask your cancer support nurse about it or email the consultant's secretary to ask him/ her?

We and the nurses at the helpline 0808 808 0000 can guess at what it might be but could b completely wrong. After all, u don't want to waste a good worry, do u? 

Btw, it seems I've got a cyst on my liver, (seen on past monitoring CT scans post nephrectomy ). The medics know it's there but aren't bothered about it, so neither am I.

Hope that helps!

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
dom1969
Posted by

Thank you,

She said she would write to my GP within two weeks, from what else she said I've made an educated guess at a Bosniak 2 or 2f, why they cant give this information is beyond ne to be honest

buttercup01
Posted by

Is "she" the sonographer?

Yeah, why give you half a tale, enough to bother u, but not enough to inform u !!

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
dom1969
Posted by

Yes, SHE is the sonographer to be fair I did ask if there was anything to be concerned about and she said no quite emphatically....didn't have the best bowel cancer journey and a lot of trust in the NHS went out of the window...but exactly, 1/2 a tale!!!

I asked what " slightly complex " meant and she said there was a line through it., why not just say its a septated cyst for god sake i detest it when they assume your an absolute medical bloody moron, 

buttercup01
Posted by

Yeah, I totally agree  with ppl assuming we know nothing re medical terms etc

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
sueCC
Posted by

Hi Dom1969, my husband had 2 bosniak cysts, his were apparently 3 and 4 but as no one has mentioned cysts since his operation we’re still a bit in the dark over that. They were big at 30cm together, from what I read on google ( I know we shouldn’t) anything over 4 is mostly cancerous. He has Papillary type 1, grade 2 and stage pt2b, Papillary type 1 has a better outcome so I’m lead to believe. He had his kidney out last Oct by open surgery and never looked back, first CT showed a small nodule second one we got results back last week and all clear, back for for another CT in a year. Of course yours may just be cysts as a lot of people have them. Keep in touch and good luck x

Sue Xx