Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Post op

Lou68
Posted by

Hi I’m 3 weeks post op tomorrow, wounds doing well. The only problem I have is pain like burning in my left hand kidney area the pain is terrible still can’t walk properly is this normal x

Gragon
Posted by

Hi ,

I'm pleased to hear that the wounds are healing well but sorry to hear that you are experiencing pain.  I'm afraid that the amount of pain we experience does seem to vary a lot.  I had very little right from the start and struggled to walk any distance but could walk short distances OK so don't know if others have experienced a similar pain or not.  What I would say is if you are uncertain about anything contact your medical team to check it out.  At the very least you should not be in pain so even if it is nothing of great concern they should be able to prescribe more effective painkillers. 

I hope that you can get this resolved quickly.

Gragon

Lou68
Posted by

Thank you Gragon, have spoken to my support nurse who spoke to the consultant and he said that it was nothing to worry about, but my god this pain is awful. I had a cancerous 5.5cm tumor removed and partial kidney. I am 51 and feel and walk as if I’m 81 xx

Gragon
Posted by

Good morning ,

It is good that you've talked to your team but you might want to see your GP about some pain relief.

I was about the same age when I had my op and as I said I had virtually no pain.  However, as a consequence I may have overdone things and a week after coming out of hospital I had to go back in for a week with a post operative bleed and was there for longer than I was after my operation.  I had several units of blood whilst there but took ages to recover after my discharge as I became anaemic and it took months for anyone to realise.  Iron tablets and I felt much better but if I learnt anything it was that if you are not happy go back and push them.

If the pain does not start to reduce go back to them again as you should gradually improve after the operation.

All the best,

Gragon

fl0ralW0man
Posted by

Hi Lou68, I was 48 when I'd my right kidney out, with a 9cm tumour on it. I was walking with a Zimmer frame,  n could hardly bear to stand up straight coz my wound was across my stomach ( tumour too  big to do from  back  surgeon said)

As Gragon said, definitely go back re pain relief if pain doesn't start to ease up. or if you've another concerns.

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Lou68
Posted by

Morning Gragon, I have got an appointment to see my doctor tomorrow morning so hopefully everything is ok ... xx

Lou68
Posted by

Hi, I had my done robotic and the wounds are doing very well, it’s just the pain around the kidney area it’s just so intense xx

fl0ralW0man
Posted by

Do let us know how u get on x

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
fl0ralW0man
Posted by

Good luck with this morning's appointment x

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Gragon
Posted by

Hi ,

Just wondering how you got on at your appointment?  Hope you are feeling better.

Gragon

fl0ralW0man
Posted by

Me too

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Lou68
Posted by

Hello lovely’s, the doctor has given me oramorph to try with co-codamol, which I think is working at the moment. Got my results also today stage 2 cancer, got appointment to see specialist on the 6th August to go through what’s next. Thank you guys for being so caring it means a lot xxx

fl0ralW0man
Posted by

Glad u got some decent pain relief. Did the doc say why it felt so bad? Or were u so please to get something stronger u didn't ask lol?

Keep yoursrt well distracted) occupied till 6 Aug xx

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Lou68
Posted by

Yes she said it’s early days, got to go back next week to see her ... thank you I will xx

Maybug
Posted by

Glad you got the pain relief sorted out. x

I can’t go on. I’ll go on. (Samuel Beckett)