Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

Recent diagnosis

AJ47
Posted by

Hi i have recently been diagnosed with kidney cancer with a small tumour on my right kidney to say i was shocked is an understatement as originally was seeing a consultant for tummy issues   i am trying to get my head around it all and am trying to be as positive as i can but have had a few wobbles and tears   i have to go and have a CT scan with angiagram next week and also pre-op ... surgery booked for a partial removal have read loads about this and some of the stories are very scary as some people have shared horrific stories of still being in pain after two years !!! Has anyone on here got any advice, guidance about the operation and is it normal to keep having tears/ emotional outbursts that come from nowhere

Adastra
Posted by

Hi. Your story is virtually identical to mine. I had my partial 5 weeks ago and have been recovering really well and can say that in my case I have had no pain, just discomfort. Actually, I did have a bit of pain in the first 2 weeks if I coughed deeply, but that was all. I had an open partial.

Youre bound to be nervous, tearful and upset, it’s a scary situation, but try to be positive about the surgery  it may well be that you have a good experience as i did x

Adastra
Posted by

Hi. Your story is virtually identical to mine. I had my partial 5 weeks ago and have been recovering really well and can say that in my case I have had no pain, just discomfort. Actually, I did have a bit of pain in the first 2 weeks if I coughed deeply, but that was all. I had an open partial.

Youre bound to be nervous, tearful and upset, it’s a scary situation, but try to be positive about the surgery  it may well be that you have a good experience as i did x

AJ47
Posted by

Thank you for your post which is very reassuring knowing you are well on the road to recovery  I am just worrying as its the unknown but just have to go with the flow really. I too am having open surgery as laproscopic was not an option according to my consultant, i will continue to think positive and wish you well for a speedy recovery  

CoryG
Posted by

Hi my story is the same. Appendix check, mass in Kidney found. I'm actually having my kidney removed this Tuesday.

I'm curious how did your scan come out and have you had treatment yet

AJ47
Posted by

Hi CoreyG

I went for a scan last week and have also had my pre-op have not had any further information from any findings from this scan but i am going in to have a partial nephrectomy on the 8th Aug.

My tumour was found totally by accident after having an MRI on my tummy as my gastroenterologist was doing tests for Crohns, this came back negative but the discussion went something like “good news no crohns but we have found a tumour on your right kidney”.

I hope that your operation goes ok and you will soon be on the road to a full recovery

CoryG
Posted by

Mine was for the appendix, Dr said "well your appendex is fine but....." I'm curious have they told you the size of your mass or what stage they beleive it is? Min is 7.2cm shows no spreading but I'm still terrified it has.

AJ47
Posted by

mine is only small in comparison to yours just over 3cm and they think stage 1 as no signs that it has spread thank god... i too am scared as hell to be honest , that they do the open surgery and find something else but its only natural to think worst case scenario but i am really trying to stay focused and be positive as thinking positive thoughts can help x try not to worry and stay positive  

I hope all goes well with your surgery on Tuesday please stay in touch and let me know how you get on, are you having open surgery? 

CoryG
Posted by

Yes 3 cuts.in my stomach, but the Dr promised she would try her best to line my tattoos back up when she Staples me shut lol. Anything bigger that 7cm is stage 2 and mine is 7.2 so even though they found it early and odds are (in theory) great it really doesn't help comfort me. I'll be in the hospital for just a few days then off work for 8 weeks

AJ47
Posted by

awww same as me they said i will have a cut on my side under my ribs i will be in hospital between 5-7 days and recovery time is approx 3 months  however this may be sooner i just want it done now to be honest.

is it tomorrow you going in or next Tuesday?

Take care ok and remember positive thoughts x  

CoryG
Posted by

Tomorrow. I'm here in the states. I got into the Top Cancer Hospital in my state, had to call in a few favors for that one lol. The surgery itself doesn't bother me in the least. I've had surgeries before. Get the IV fall asleep wake up in room. I just have that fear of them saying "well we found......"

AJ47
Posted by

will be thinking of u tomo and will say a prayer for u, i am in the UK  please try not to worry. have you had MRI scans and also CTScans, did you have the angiogram? am sure if there was anything else it would have highlighted with the dye on one of your scans. stay positive ...remember positive thoughts, think of something you can treat yourself too once all this is over

Please take care ok and the surgery will soon be over and you will be on your road to recovery, i still have a week to go before i go into hospital for my surgery  stay in touch ok let me know how it all goes x

CoryG
Posted by

I had the CT scan with Dye it showed no spreading. I also had a chest x-ray that looked good. The odds are heavily in my favor that once the kidney is gone I'm good. It's just that uncertainty that has me scared

CoryG
Posted by

Surgery went well. Mass was a little bigger than thought so my onr incision is a bit bigger. My stomach muscles really hurt but other than that all good

AJ47
Posted by

awww am so pleased your surgery went well but sorry to hear the mass was bigger than expected. Rest up and try and take each day as it comes, hopefully you will soon be heading back home to begin your recovery period.