Kidney cancer

A place for people affected by kidney cancer to support one another, ask questions, and share their experiences.

11 WEEKS AFTER PARTIAL KIDNEY REMOVAL AND STILL IN PAIN ,CANT BEND,WEAR JEANS ETC

USCherub
Posted by

I left the hospital with THREE... THREEEEEEE... days worth of pain medication. After that, Tylenol was all I was allowed. NO ibuprofen, NO aspirin, as those are blood thinners, and in a partial neph, the kidney can sometimes bleed in the weeks after. Stop the ibuprofen if you can for now, it's too soon. I think docs underprescribe narcotics to avoid constipation and dependence, so I'd not worry about their motives in wanting you back to work.

If you haven't had a BM in the entire week, that's no good. I spent 3 days in the hospital (this past December) and they injected my IV with laxatives twice a day. So if you've gone a week, I think it's a good bet that it's really irritating an already tough week. Doc should have sent you home with some softeners too. If not, BUY SOME ASAP! 

The first week is a challenge for sure. But I think youre right where you should be, especially now that you got a scan to rule out complications. It's just a rough time.

Im at about 8.5 weeks out since my DaVinci robot surgery, and just don't listen to anyone that says robotic or laparoscopic is a breeze. They carry their own set of challenges. I've done more research than I ever cared to, and robotic surgeries really beat the hell out of your guts.

Also, don't let people tell you that partials are so much easier than radicals. Whole the incisions might be smaller, you are left with an organ that is cut in half and has to heal.

I think you're doing great. Youre online and communicating, which is a good sign even if you're in pain. I don't think I was, and all in all I'm ok. 

Simurgh
Posted by

Hello there.

Was not oxycodone ever an option? I have massive scar tissue from 3 ops and pain from it all 5 years later and oxycodone turns out to be a winner.  That is, of course, if you're prepared to accept addiction tolerances in the first place. I think the stronger opiates can be the least of several evils when you're battling c. 


God bless.

USCherub
Posted by

Simurgh, oxycodone was what I had for 3 days. But that's it. I called once to try to get a little bit more, but was told no, not without coming back to the hospital. I had no way to get there bc I was only a few days oro and couldn't drive. So Tylenol it was. :/

Simurgh
Posted by

Hello there,

Apologies if I missed it in your post. It's not entirely surprising that staff don't want to bother with 'Oxycontin'/Longtec/Shortec(?) given its class A status and dreadful reputation in this country as elsewhere, but a mere 3 day's worth (@6 x 10mg?) is going to cause more problems than it remedies, given no experience with it a priori. It's 1.5 x oromorph's 'strength' and was prescribed for you, so you -must've needed it- as a prescription rather than tramadol for example. Further apologies if I have presumed the dosage.


Seems your ordeal was a combination of poor judgment and standards by people who should know far better. Has a pain clinic, aside from that, ever been discussed? I'm feeling kind of outraged for you at this point, but, as always,


God bless you and yours.

USCherub
Posted by

Simurgh, no worries at all on assuming dosage, bc they were gone so quickly, so long ago, that I don't even remember. 

The hospital I am with in the U.S. is one of the top 3 in the country, yet my experience has been that even though my surgeon has been FANTASTIC, the rest is just so huge that it's a mess. Per example, my surgeon called me from home this past Monday to discuss this most recent pain. He wanted a CT scan immediately to check for pseudoaneurysms. Once the hospital itself got around to scheduling though, it's almost 2 weeks since I called to ask if I should be concerned. I really just have to laugh sometimes bc by now I always know that what the doctor says, and what will actually happen, are wildly different.

The pain is still there, but actually much less than this past weekend, so I'll just wait for the appointment. Tylenol it's been for the last 8 weeks, Tylenol it shall be for 2 more.  :)


In your profile I see that you have had a number of surgeries. Were they all RCC that had popped up in your other organs? What an ordeal you've been through.

Simurgh
Posted by

Yeah. It's been a ride. Some including your Pres. deride the wonderful Brit NHS, but it's saved my life three times so far; the problems lie with its birth -- example -not designed for such a large population / for sooo many people to demand simultaneously during flu epidemics and Co. 

Political conundrums aside, my original 2kg tumour spawned a fair few offspring but all slow-growing, all detected back in 2013, and fit for termination by surgery, Arnie. They may of course 'be back'. (ugh). Others have it worse.


Tylenol / paracetemol seems a bit limp for pain relief btw. God bless.






Cherries17
Posted by

Hello, I was reading your post which was helpful to me didn’t realise thou it’s two years on since you wrote it!!!

I do hope you are on the mend now.... please feel free to chat even if it’s only a rant!!!

I’m 5 weeks pist op that’s after right still having to take high doses gabapentin..... if I don’t can’t walk... would love to know how you got through and a catch up on how you are today!!!! Well I hope and much better, take care x

Cellogirl45
Posted by

Was this specifically to me?

Happy to chat. 

Cellogirl