Not the news I was hoping for

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I'm 9 weeks post nephrectomy and saw the oncologist yesterday expecting and hoping to start immunotherapy as a preventative against recurrence. Unfortunately the scan I had last week showed a 7mm spot behind my liver which could be cancer or inflammation. I now have to wait 8 weeks for another scan and a further 3 weeks for the results. I got the feeling the oncologist suspects it is cancer and will have grown by then as it wasn't there 3 months ago when I had my initial scan.

Feeling very scared as I know kidney cancer is difficult to treat once it spreads.

  • Hi. Im sorry to hear this news. I can imagine how horrible the news must have been for you.  When I had my first CT scan back in April, I was also informed they I had a 3mm nodule on my liver.. they are not too sure if cancer or not... but I'm 14 weeks post op today radical nephrectomy left kidney .  I have my first CT scan on 1st October which I'm anxious about.. x 

    Have you spoken to your cns ? 

  • Hi. It was my first oncology appointment so I only got the details for my cns then. I was given one previously by the urologist but she wasn't very helpful.

    Hope all goes well for you with your scan. The waiting for results us awful isn't it. I was lucky I only had to wait a week this time as if I was going to start preventative immunotherapy it had to be within 12 weeks of surgery x

  • How are you today? 

    1. Beginning to get my head round things. Every time I've had a consultant it seems to be bad news but if I hadn't opted to  have immunotherapy this spot, if it is cancer,wouldn't have been discovered for another few months so which may be a good thing. I'm being to think my mantra should be 'expect the worst but hope for the best '.
    2. The oncologist was lovely and I do feel I've got support x
  • Thought of you today having your scan. Hope you don't have to wait too long for the results x

  • Scan was ok. It's the waiting for the results! I have been very emotional today. I wasn't even like this at my first scan in April where they found the tumour.. 

    silly feelings and thoughts going on in my mind .

    are you doing ok? 

  • I know what you mean. I had a really bad night after my scan imagining the worst. I call it middle of the night syndrome and again the night before getting the results. My first scan was done when I went to A&E with bad palpitations. Heart and aorta fine but it picked up a kidney lesion which was told was probably benign! Since then it's been bad news every time I see a doctor. 

    After a bad few days I've been better the last couple of days. Helped no doubt that the soreness from the surgery finally seems to have settled. I'm trying to take one day at a time. It's the only way I think I'm going to get through the next 10 weeks until results of next scan. A friend said to me 'hang on to hope '. 

    I've been trying camomile tea at night to help me sleep. It seems to help a bit. 

    Hope you're feeling  a bit better tomorrow.  Do you have a date for your results?

    Take care x

  • I need more camomile tea. It's quite nice isn't it.  My friend told me about the one that has camomile and lavender.. both quite calming.. so will try and find it x

    Glad you're feeling ok, although a little sore. The pain does subside quite quickly, to just a dull ache. Hopefully you'll be ok soon. Have you taken any pain relief?. Xx

    I have been a silly mess this week! Really don't know why, I'm 15 weeks post op. Feel ok but so tired all the time. More tiredness than before my op! It's very odd.  The sooner I get my first set of CT results the better, might relax a bit. I keep worrying about the 3mm nodule they found on my liver back in April along with the kidney tumour, hope it's remained at 3mm!!

    what do you have planned today!? I put my dog outside, it's rather chilly x 

  • Hope you're feeling a bit better. Waiting for results is awful isn't it? I've been trying to keep myself busy but yesterday wasn't too good. Feeling tired and then thinking about what might lie ahead. I'm 10 weeks post op and find the tiredness frustrating. My eldest daughter rang today and told me that my age, 76, won't help with that!!

    Don't like to be reminded as I don't feel that in my head!  Think it's easy to forget that we've had major surgery because it was keyhole and you're home again so quickly. 

    You take care andFingers crossedfor quick results x