I was diagnosed two days ago. Confused and scared.

We just try to get through our journeys the best way possible.

Everyone's story is an inspiration to me to carry on fighting for ourselves and our families.

I try to give back by writing on here, however little.

All the best to you.

Dear Fleabane,

of course you are right, thank you!

I hope you well, and your healing is on going.

Good to have you guys here and calm myself with your very kind messages.

Wish you easy, pleasant weekend! 

Hugs, hugs, Marigold!

Thank you. Right. This is what I am going to try!

I'm sorry the lesion is very large. Have they actually told you a size for it? There are ways to treat this, I believe, that don't involve invasive surgery. I've read something about abrasion. Not sure if that's the same as cryotherapy. Both are less invasive but not necessarily as certain to effect a complete cure. Depending on whether your lesion has invaded other connected areas or not, a full nephrectomy may be the cure you need. There may be a possibility to give immunotherapy or something similar, without doing the surgery, but I think it's normally surgery first and then other treatments, although not sure...basically, I am not medically trained and can only comment on my own experience and the bits I recall of what others here have posted about theirs. 

You honestly need the full picture for this, as it applies to your specific lesion and circumstances. You will get that best, by talking with as many of your kidney team as you can: consultant/surgeon, kidney/urology nurses. You will have a team assigned to you but atm it sounds as if you are in limbo, playing the waiting game even insofar as contact with your medical team goes. 

I have read (I am cynical also of pharmaceuticals) that it's more profitable for the "big pharma" to have loads of diseases and illnesses etc to throw their expensive products at to try to treat them, than for anyone, pharma or government, to find preventative measures. They all make their money (including government with the taxes on the pharma) by treating what could be preventable with a different approach to health. It would be nice if in the future the emphasis were put firmly on prevention rather than cure, but this is going to take a long time to turn around.

In the meantime, we can each only do what we can and know, to help ourselves to keep well and fit. I'm not sure what Nutri juices are. I'm on my soap box atm over UPFs (ultra processed foods) and if it's got more than 5 ingredients in it, especially words I can't pronounce, I reject it! I drink various fruit juices but always check the ingredients. Whole fruit is more nutritious if you can manage that. If you don't have much appetite, try and cram in a little of each of protein, fibre and a little carbs. Even if you are not eating a lot, if what you eat is as nutritious as possible, you are doing a great job! If your best way of doing this is Nutri juices, go for it! because they sound as if they are full of vitamins and minerals? 

The healthier you are and the fitter you are, the better you are equipped to sail through either surgery or any other treatment they recommend. You are on the right track. But only you can make the final decision on what to do and you can only really do that once you have has a consultation and have the full picture of all your options.

Dear Maite,

it is so calming and joyful to read your message, thank you.

Still no consultation, but now I can wait, no symptoms, no pain (very little).

My magic drinks come from my head and whatever I have in the fridge.

there is a juicer, Nutribullet , you put whatever greens or fruit you want and make a juice.
I used to do this for long time, when I still worked,

I start a new adventure, discover what food will make my immune system stronger and more active, and go for it.

Yes, you can say, it's a bit late for this, but anyway, I want to help my poor body to fight.

Let you know if there'll be any news.

hugs and hugs, Marigold 

Hi Marigol, in regards to your question - I was told I had a cancerous tumour in January - my world fell apart. Never in a million years did I expect someone to tell me I had cancer. I describe it as the ticker tape being thrown in the air, and then my life coming down in 30,000 pieces. We were in the awful position too, as my partner's mum was end of life, and then did pass away during the time we were told about my cancer. I've never felt so physically drained, and had to call in sick at work, as I couldn't cope with working, visiting mum in the care home, and the horrendous emotional pain of being told I had cancer. I've had my surgery, tumour was removed in March by robotic keyhole partial nephrectomy. I'm slowly recovering, physically, mentally and emotionally. I am a survivor, and so will you. 

We are all here for each other - I have had some very bad days, and reached out on here. There are so many people in the same situation, and it's so nice to hear that we are not going through this alone. 

Good luck in your journey, and always here to listen. x

It is NEVER too late to eat and drink and live as healthily as you can!! That did briefly cross my mind actually, I admit - but the logical bit of me immediately took over and I realised that by eating and drinking and exercising well even after a serious health issue, it can help prevent different health conditions hitting in the future, and of course also help prevent a previous condition, such as cancer, returning in the future. So I have been looking also for the last two years for what I can do to improve my future chances. I was eating healthily before my first cancer, but not long after that I started reading about UPFs and I have now greatly reduced my intake of UPFs in my diet, as well as being very aware of other environmental factors...I have stopped drinking bottled water and have swapped my refillable plastic bottles for glass ones, and no longer microwave in plastic, and am gradually replacing my plastic utensils with wooden ones and my non-stick pans with stainless steel ones, having decided that even a few little changes are better than no changes.

Your juicer mixes sound fantastic! Yes, you can put in any number of fruit and veg, and experiment. I have tried doing this in the past but I don't have a lot of spare time, so I tend to now grab a piece of fruit, and the veg is with my meals, boiled on the hob. But mixing to get yummy juices, is fun and very beneficial. I have read that beetroot is one of the best nutrient-filled things you can eat/drink...alas I absolutely hate beetroot (about the only thing that I absolutely cannot stand) but if you eat beetroot, add some of that to your juices too. 

Dear Betsy,

I am very sorry to hear how every bad things came together in your life at once.

You're still very brave! Good to know that bad things are over and you could start to make order in your healthy life.

My journey starts just now, and I have decided, take it as it comes. I think it's going to be mostly bad, painful etc.

Anyway, have to marsh forward for the sake of my daughter and stay here as long as I am able.

Thank you for your message! 
hugs , Marigold

Hi,

the only problem with my juices, that I can't stand anything sour. so I have to balance not to make sour drinks. But I love beetroot , so what a good idea, I will include some.

I don't expect miracle, although I believe in miracle, but if this juice hokus pokus means a bit less pain or shorter suffer... You understand.

Dear Maite have a lovely weekend and thank you.

Marigold

 Marigol even though I have had surgery, and sporting five lovely incisions, I haven't accepted things. I cry at the most silliest things, one minute I'm loving people, the next I'm screaming. On top of all my troubles, I am having horrendous problems with my adult children. Long story so won't bore you, but basically they don't care. 

That's all we can do, is take each day as it comes. We are all fighters. When I was diagnosed I held onto my partner and sobbed that I wanted to grow old with him. I intend to do that, just as you will be around for your daughter.

Much love xx