Hodgkin lymphoma

Affected by Hodgkin Lymphoma? Join this group to share experiences and ask questions to people who understand what you're going through.

Time scale on relaspe

DazzaP
Posted by

Morning all .... sorry haven't been around have been trying hard to get back to some normality and kept myself busy which might be the answer to my next question.

This could very well be me being paranoid but does anyone know any stories on people who relapse and time scales... it's been 3 months since my last chemo and last month or so I been pushing myself pretty hard to get back to some fitness.... anyway last week or so I have started getting some joint pains again ( major symptom from when I had it last time) and I have been feeling very tired .... I have put this down to me just pushing my body a bit hard but last night I had a night sweat .... it wasn't as bad as towards the time I got diagnosed but it still woke me and had to get up to cool myself down. 

I know I am prob just being paranoid but the thought of going through all this again scares the life out of me. 

Darren 

Ps going to see me GP today get some bloods taken 

moomy
Posted by

Hi Darren, 

sorry you’re experiencing symptoms, they might not necessarily be associated with HL of course, but of course it’s uppermost in your mind.

GP may help, bloods may help but of course might not show anything abnormal, if you’re still concerned then please get in touch with your specialist nurse (yes they are fine about this even 3 months on) who will expedite anything needed. 

And finally, don’t panic! 

Hugs xxx

moomy

DazzaP
Posted by
  • Thanks moomy ..... sure it is nothing prob just a cold or something 
MrsKG
Posted by

Can't help you with timescales Darren, but try to remember that your body will be shaking out the after effects for months. I just spent two days stiff as a board because I was doing some cutting out for sewing on my hands and knees on the floor on Monday. It takes something like a year to get totally back to normal. 

Also try to remember that in this weather, a night sweat is highly likely just that this country is finally having a summer for once. I am waking up sweating regularly due to it!

The paranoia and worry is also totally normal after any kind of cancer. 

You really are doing great, try to remember that. 

Hugs

Kat xxx

DazzaP
Posted by

Thank you Kat 

And am sure your right....... it prob is that I am paranoid 

I have been doing to much and like you say it is hot , but my worry is I used those excuses last year and I was wrong.... but this time it's prob is just that but this damn disease we have/had ruins your mind and makes you paranoid

Darren 

johnr
Posted by

Hi Darren, remember fatigue is a side effect of chemo and I know from myself and others in the NHL world this can hit at any time and bone and muscle pain is another effect post treatment that can last for a while. When those original symptoms appear its natural to wonder so you are doing the right thing, when it happened to me I spoke to my specialist nurse and had ended up going in to see the consultant for a chat and check up. Twice that led to scans just to play safe and on the second occasion my gp was more concerned than I was. 

Hope it turns out to be delayed side effects

John 

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
Thehighlander
Posted by

Hi Darren, I am with everything the others have said. Your body has been a rather bad rollercoaster expereances and your body is still in the 'wow what was that all about?'

But always good to keep the checkups going and as these get further apart you are trusting your body more.

Mike - Thehighlander

Some journeys take us far from home but some adventures lead us to our destiny CS Lewis

SCT NHL TCell

DazzaP
Posted by

Thanks all .... have an appointment with my consultant on Wednesday so hopefully will clear it all up 

DazzaP
Posted by

Just a quick update ..... bloods were abnormal, so they have booked a PET ct scan ... took more bloods and within a hour the phone was ringing for me to go see my consultant on Monday again ........ not looking great ..... what is it is I suppose 

Darren 

Thehighlander
Posted by

Darren, this could mean anything so don't try and second guess as from my expereance what I thought was completely wrong and more often then not I found that most of my blood issues were low blood counts and had to have transfusions. 

Lets see what Monday says and remember o get a clear indication as to what the plan is.

Mike - Thehighlander

Some journeys take us far from home but some adventures lead us to our destiny CS Lewis

SCT NHL TCell

moomy
Posted by

Hi Darren, 

as Mike says, there could be all sorts of reasons, try not to panic! There’s nothing you can do at this point, so (easy for me but really hard for you) try distraction for now till when you see your consultant. 

Hugs xxx

moomy

MrsKG
Posted by

Hi Darren, 

so sorry to hear that you now have this worry. I am fervently hoping that the PET scan shows nothing, and its just post treatment niggles throwing your bloods out. Wishing you all the best and keeping you in my thoughts. 

Kat xx

DazzaP
Posted by

Morning all ... thanks for the messages ..... reason I got called back was the blood was no use so they had to take more ( since I finished chemo my veins run away) ..... I have a PET scan in the morning and my consultant on Wednesday so hopefully all will be clear by then. 

moomy
Posted by

Phew! 

(But we did tell you not to be concerned!) 

hugs xxx

moomy

Miss_Flowers
Posted by

Hi Darren 

Sorry you are experiencing this I do hope it is nothing your body is probably just trying to get back to normal as its had a shock and been through a lot. 

However I did think after my treatment any little illness I thought oh no these symptoms seem all too familiar but I find with myself that it sometimes is all in your head, and can be a little paranoid.

When are you due to have your bloods taken?

GOOD LUCK!!