Morning all .... sorry haven't been around have been trying hard to get back to some normality and kept myself busy which might be the answer to my next question.
This could very well be me being paranoid but does anyone know any stories on people who relapse and time scales... it's been 3 months since my last chemo and last month or so I been pushing myself pretty hard to get back to some fitness.... anyway last week or so I have started getting some joint pains again ( major symptom from when I had it last time) and I have been feeling very tired .... I have put this down to me just pushing my body a bit hard but last night I had a night sweat .... it wasn't as bad as towards the time I got diagnosed but it still woke me and had to get up to cool myself down.
I know I am prob just being paranoid but the thought of going through all this again scares the life out of me.
Ps going to see me GP today get some bloods taken
sorry you’re experiencing symptoms, they might not necessarily be associated with HL of course, but of course it’s uppermost in your mind.
GP may help, bloods may help but of course might not show anything abnormal, if you’re still concerned then please get in touch with your specialist nurse (yes they are fine about this even 3 months on) who will expedite anything needed.
And finally, don’t panic!
Can't help you with timescales Darren, but try to remember that your body will be shaking out the after effects for months. I just spent two days stiff as a board because I was doing some cutting out for sewing on my hands and knees on the floor on Monday. It takes something like a year to get totally back to normal.
Also try to remember that in this weather, a night sweat is highly likely just that this country is finally having a summer for once. I am waking up sweating regularly due to it!
The paranoia and worry is also totally normal after any kind of cancer.
You really are doing great, try to remember that.
Thank you Kat
And am sure your right....... it prob is that I am paranoid
I have been doing to much and like you say it is hot , but my worry is I used those excuses last year and I was wrong.... but this time it's prob is just that but this damn disease we have/had ruins your mind and makes you paranoid
Hi Darren, remember fatigue is a side effect of chemo and I know from myself and others in the NHL world this can hit at any time and bone and muscle pain is another effect post treatment that can last for a while. When those original symptoms appear its natural to wonder so you are doing the right thing, when it happened to me I spoke to my specialist nurse and had ended up going in to see the consultant for a chat and check up. Twice that led to scans just to play safe and on the second occasion my gp was more concerned than I was.
Hope it turns out to be delayed side effects
we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
Hi Darren, U am with everything the others have said. Your body has been a rather bad rollercoaster expereances and your body is still in the 'wow what was that all about?'
But always good to keep the checkups going and as these get further apart you are trusting your body more.
Mike - living my new life and trying to make a difference
'Some journeys take us far from home. Some adventures lead us to our destiny' C. S. Lewis
SCT NHL T Cell Community Champion
Thanks all .... have an appointment with my consultant on Wednesday so hopefully will clear it all up
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