Hodgkin lymphoma

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Ultrasound Scan Found 7cm Node - Information/Advice Anyone?

Temflake
Posted by

*** Posted in both Hodgkin & Non-hodgkin groups due to not having a diagnosis *** 

Hello again all,

I'm still awaiting biopsy and CT scan results and have been checking my GP online records each day to see if there are any updates (the likelihood is that the results will go straight to the hospital anyway but I'm doing it just in case).  No news on the more recent tests but I did find a letter written by my ENT consultant BEFORE the biopsy had taken place which said that a 7cm lymph node was found in my neck on ultrasound and the CT results were not yet available.

Needless to say, I find this a bit alarming.  My understanding is that nodes greater than 1cm/1.5cm dependent on location are considered concerning.  I knew that one node in particular in my neck was large as I have felt it is choking me at times because it is pressing on my throat.  However, 7cm seems bigger than I expected.

Has anybody any knowledge or experience relating to node size?  Is a node this large more likely to be sinister?  I am also now additionally worried that this very large node is not the one from which the biopsy was taken (because of its location the ENT surgeon felt it would be safer to test a node from elsewhere).  Does that mean that if the biopsy comes back negative I could still have lymphoma which would show up if the more enlarged node was to be tested?

I am sorry for all the questions.  If I'm honest, I am freaking out pretty badly right now.

Any responses are greatly appreciated.

Tem*** Posted in both Hodgkin & Non-hodgkin groups due to not having a diagnosis *** 

Hello again all,


I'm still awaiting biopsy and CT scan results and have been checking my GP online records each day to see if there are any updates (the likelihood is that the results will go straight to the hospital anyway but I'm doing it just in case). No news on the more recent tests but I did find a letter written by my ENT consultant BEFORE the biopsy had taken place which said that a 7cm lymph node was found in my neck on ultrasound and the CT results were not yet available.


Needless to say, I find this a bit alarming. My understanding is that nodes greater than 1cm/1.5cm dependent on location are considered concerning. I knew that one node in particular in my neck was large as I have felt it is choking me at times because it is pressing on my throat. However, 7cm seems bigger than I expected.


Has anybody any knowledge or experience relating to node size? Is a node this large more likely to be sinister? I am also now additionally worried that this very large node is not the one from which the biopsy was taken (because of its location the ENT surgeon felt it would be safer to test a node from elsewhere). Does that mean that if the biopsy comes back negative I could still have lymphoma which would show up if the more enlarged node was to be tested?


I am sorry for all the questions. If I'm honest, I am freaking out pretty badly right now.


Any responses are greatly appreciated.


Tem

Thehighlander
Posted by

Hi Tem I have given you an answer on your NHL Forum question.

Mayfly95
Posted by

Good Morning Tem,

I was diagnosed with Hodgkin's Lymphoma May 2017 and has a collection of swollen lymph nodes (one the size of a golf ball just under my clavicle). It can be very ominous due to the size and where it is located.

An mri showed that I also has a collection that was squeezing my windpipe under my sternum the size of a cricket ball. This is hugely alarming as it was too dangerous to have my biopsy under general anaesthetic... They biopsied the one under my clavicle and the results took 15 days to come back to me. The cancer at the time wasn't diagnosed and they were trying to rule out Non-Hodgkin's as I was showing some traits. They need to be certain of the diagnosis and usually want to make sure they have a correct diagnosis and all available treatment options in place before giving you further information.

I hope you find this helpful...

If you have any further questions please get back to me