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Ahh..I’m going tomorrow for more info on the PEG..I know I’ll just be sedated..did you have RT?..very best wishes
I had Radio if you are asking me, the first time the tried to put mine in they couldn't as I couldn't open my mouth wide enough, I was sedated and woke up in a different room so wouldn't of known about it and it was the same with removal. They did mine eventually when I was having my first opturater (a plate to fill a hole) a fixed one removed and a removable one in so I was well out that time.
I was just wondering about the radiotherapy mask..it’s that that is worrying me really x
Yes I did have radiotherapy and chemo , and did not have any bad side affects and took things one day at a time as you will have good and bad days. All the best .
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The mask is not a problem you just lay on a bed and they put a warm mesh over your face and mold it to be a snug fit, and you have to wait a short time for it to set, I should stop worrying about it as after that you only wear it for a few minutes every day.
Thank you x
I read all posts with empathy and understanding. My husband is just coming to the end of his 7 week chemo/radiotherapy treatment and wanted to share his story which I hope will help others on this journey. As with others' experiences, he had to have teeth removed and a RIG (peg) fitted in advance of treatment commencing. He is due to finish this Wednesday coming (19June) and so far has not had to use his RIG, his swallow has remained in tact and is managing to eat quite a varied diet with minimum issues. Don't get me wrong, he has had challenges over these last week's - nausea to be brought under control, problems with mucus and saliva which had to be managed and thrush which required treatment. He has lost weight, but supplements with nutrition drinks/shakes and is fatigued most of the time. But we feel so lucky so far in as much that the side affects are less harsh than some experience. Look ahead to your journey which may not be as bleak as expected.
@June1989 where is your husband treated? is the radiation type different?
Many thanks for your words..it does make me feel better
very best wishes to you both x
He is being treated for left tonsil/base of tongue. The same radiotherapy/chemotherapy 35 sessions combination, as discussed by other head and neck cancer patients. Does that answer your question ok?
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