Hi there; looking for facts mainly - I have Trismus from my chemo/RT now complete.I have a peg thing (not a peg the other thing - cant think of its name right this minute) but whilst my mouth itself is healing well ( I think, but obviously cant see inside!!) and the original lump has shrunken, the Trismus progress I was making prior to all the post RT ulceration has gone; I cant find much on line about Trismus - I know what it is, I find stuff like "long term poor prognosis" but want to know what this actually means other than bad news. What is going to happen from now on; I have about one finger opening left.
Any clues, practical advice and suggestions re this - + the pain, and accompanying misery is most welcome.Thanks, Nemo
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