first post

I have Adenoid cystic canncer in saliva gland above left palet.It has grown into left jaw muscle,left eye and through nerve into my brain so operating not an option. going for more scans before consultant can give me any options but he has mentioned radio therapy. This all happened in just two weeks. I am impressed with how quick got scans and biopsy n stuff.Am sat here feeling peaceful,content enjoying some music.My sister thinks it has not sunk in yet. I feel its possible accept whatever happens and still find the joy in life. Or is that the morphine talki.ng? I know nothing about cancer or treatment .I suppose most people are the same .Would love to here how others coped.

  • Hi dog bloke, welcome to the group sorry to hear about your diagnosis, I don't know much about this area where the cancer is but its great that your team has acted swiftly with the scans and biopsy, etc, this normally the case as once you get on the system it all happens quite quickly, good luck with the next lot of scans, hopefully, they will give a clearer picture of the next steps. I was very much like you when I was told and just took things a day at a time and carried on, as usual, working, music, tv socializing because I think the more you think the worse things can get. Of course, I was concerned but I steered clear of Dr google and put my trust in my consultant and his team. At that present time, i did not know about this forum which was a shame as i know it would have helped me. 

     Maybe someone who on this site has cancer in this area will give you a better idea and how they coped, all I can say is all the best and please re-post when they give you a treatment plan, take care, stay positive.

                                                                                            Chris

    Its sometimes not easy but its worth it !                Click here to find out more

  • Hi, dog bloke, i can't really add any more than Chris has already said, but I would like to wish you all the very best, with your scans and treatment.

    Regards Ray.

  • Thanks Chris,never done any social media before. It is encouraging my firstt reply is from a genuine guy  who sees things in a way that i can identify with. I just poped to your page and read about Chris.I am humbled  by your lovely attitude and encouraging reply after reading your journey so far, If you can deal with all that and stay positive that gives me strength,courage. i'm glad i found this site. I am a 56 year old called peter. thanks Chris. 

  • Thanks Ray. Am going to look at your journey {profile) now.

  • Hi Peter

    glad you’ve found the group here. They are very supportive so stick around. Can’t add much to Chris’s post except I’ll keep my fingers crossed the RT will help. I managed six weeks of it but for a different cancer and I’m a wimp of a woman if 69. 
    Intriguing name. Go on.... what sort of dog? I have always had Border Collies. 
    Take care

    Dani

    Dani
    Squamous Cell Carcinoma base of tongue diagnosed September 2018. T2N0M0. 67Gy radiotherapy over six weeks December/January 2018/19
    The blog is my personal cancer journey, warts and all. 

  • He is a Patadale terrier. Each name i put in was alteady being used so tried dog bloke. Not realy dog mad but i do love him, Been me and him last ten years, Thanks for reply Dani. I'm Peter a 56 year old boy,by the way. Never used social media so posts take ages. I am plesently surprised by this site. I'm a bit cynical.

  • Could not find your profile. Is that because you aint done one or i don;t know how to find it?

  • Yes it’s there. Just click on my photograph 

    Dani
    Squamous Cell Carcinoma base of tongue diagnosed September 2018. T2N0M0. 67Gy radiotherapy over six weeks December/January 2018/19
    The blog is my personal cancer journey, warts and all. 

  • Lovely dogs Patterdales. B*****s for getting through the smallest space and into trouble. I’m married to a Yorkshire man. You have lovely countryside to live in. We are in Wales. 

    Dani
    Squamous Cell Carcinoma base of tongue diagnosed September 2018. T2N0M0. 67Gy radiotherapy over six weeks December/January 2018/19
    The blog is my personal cancer journey, warts and all. 

  • Hi Peter

    Got to love a man who calls himself Dog Bloke. 

    We've always had terriers, the last one being a Fell Terrier.   Not unlike a Patterdale.  We loved her to bits.  Now have a rescue who's nothing like a terrier but once I read about her life I had to give her a chance.

    Most of us on the Head and Neck Forum have had radiotherapy for treatment of some type of cancer to that area.  Mine was base of tongue.  People have different coping strategies.  I very much wanted to know as much as possible from reliable sources so I could make informed choices about my treatment.  I did have a wobble for a couple of weeks before I started treatment but that was because my mind was making up scenarios that never transpired.  Other than that I remained fairly calm and carried on as usual until I started treatment.  I found it was close family members who were panicking more than me.

    Glad you've found us and wish you all the best with your scans.

    Linda x