We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Head and neck cancer

A place for people affected by head and neck cancers, including oral, throat , larynx (voice box), salivary glands, middle ear, and sinus and nasopharyngeal cancer. Support one another, ask questions, and share experiences.

Newly diagnosed

SteveTom
Posted by

Hi All

i am newly diagnosed with throat cancer,  I go for my first hospital consultation on Monday 29th  June.  I am told my treatment plan will be discussed and sorted, that I might have a PEG and that it will probably be up to 4-6 weeks of radiotherapy.  Personally I have really struggled with pain management and my ability to eat.  I know I am going to be off work for at least 4 months so money will be an issue and being locked away shielding is not going to be easy either.   

Any thoughts / experiences please share 

SteveTom

hugg 1
Posted by

hi steve tom, i only joined 2 days ago   my self mate,, but fill in the email thing they do  on this site and we can all help each other ,ive got a lot of knowledge/through personal experience about tongue cancer ,im going in hospital on the 4th or op date 8th,but take heed mate ,we,ll get there,,,,sorry if you carnt understand my txt  but im ,,like all carrying some pain ,,,ok hugg1

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Beesuit
Posted by

Hi SteveTom and welcome here. 
Theres  lots of help and support here. 
Do you know any more about your diagnosis? 
What stage and HPV status? 
And what have you had done so far. 
it’s an awful lot to take in but dip in and out of here as problems arise. 
it’s a tough treatment but doable. 
I was 67 when diagnosed and I’m now 17 months post RT and well. 

Dani
Squamous Cell Carcinoma base of tongue diagnosed September 2018. T2N0M0. 67Gy radiotherapy over six weeks December/January 2018/19
The blog is my personal cancer journey, warts and all. 

SteveTom
Posted by

Hi Hugg

I understood all Of that mate   Good to have people on here with experience. 

steve

hugg 1
Posted by

im a down to earth chap steve,, this is my second run with cancer,iv had max, radio/chemo 10 year ago but the buggers resurfaced,that means i carnt av radio or chemo any more so im having ,,lip split mandibulotomy on the 8 of july,so this one is a new adventure but if you want to no any thing in,, laymans terms , ill help you as much as i can friend,,,hugg1

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RadioactiveRaz
Posted by

Hi Steve Tom welcome to the club that nomen if us want to join but now you are here there’s a fair few if us who have been there and done it so to speak. I am Hazel I am nearly 2 years post treatment for tonsil cancer with several affected lymph nodes now living my life  as normal as I can. As @Beesuit  says it’s doable I was 61 when I was diagnosed.I have a blog when you feel brave enough give it a browse there’s links to others in there plus links to throat cancer sites .Best advise I can give yiu don’t surf the Internet go on trusted sites  as anyone can post things. Macmillan and cancer U.K. sites plus any if the blogs in here will help. 

You shouldn’t suffer financial lloss have your Macmillan nurse assigned as they can assist financially.

if we can help just ask someone always willing to help

Hazel

Hazel aka RadioactiveRaz 

My blog is www.radioactiveraz.wordpress.com

i give a honest account of my experiences with tonsil cancer 

T2N2NM equals tumour size 2-4 cm 2 affected lymph nodes  later changed to several after pet ct scan NM no distant metastatic .35 radiotherapy sessions and 2 out if 3 planned cisplatin chemotherapy sessions.   Now fast approaching the 2 years since end of treatment. Good luck to anyone starting out will always help if I can  

chris2012
Posted by

Hi SteveTom , so sorry to hear about your throat cancer, their plan of attack is about right with the radiotherapy and the PEG. If i was you i would try and push for a PEG as i expect you will need to use it during and after your treatment period. Your pain should be well managed and kept under control as most of us have needed some sort of pain relief. This is why the PEG will be an asset if your ability to eat is a struggle. I would try and take the next few weeks a day at a time and sort each issue as it arises this includes work as some companies pay for a certain amount of time and have to keep your job open by law in most cases, there are also other benefits you will be entitled to which a Macmillan Benefits advisor will help with. I would concentrate on what lies ahead at the moment and worry about work later when you are on the recovery route, hopefully the risk of the virus would be very low and shielding as such will not be so much of an issue. Good luck for Monday and please come back if you need further advice or help. All the best, take care .

                                                                     Chris 

Its sometimes not easy but its worth it !                Click here to find out more

hugg 1
Posted by

hi steve tom ,thought id let you no but the meet you,ll be having on the 29th will be to tell you what order things go in mate ,unless its changed but they will not start your radio without your peg in ,cos thats basically your food life line cos the throat will be sore and tender,just a bit of info for ya ,by the way i had my peg in first time round for 18 month ,not that i was using it mind,and another thing is ,i got to thinking how do they take this out ,,well mister blister,the nurse said to me ,,,hugg [glenn my name] theres only one way to do this and whack she just pulled it straight out,dunt half make u jump mate bur it was gone any way see ya soon

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Ben12
Posted by

Good luck with the fight !