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Head and neck cancer

A place for people affected by head and neck cancers, including oral, throat , larynx (voice box), salivary glands, middle ear, and sinus and nasopharyngeal cancer. Support one another, ask questions, and share experiences.

Sinus cancer.

hugg 1
Posted by

i hope everything goes ok for you mate

  • hugg
hugg1
Warrior girl
Posted by

Ahh Chippy, I feel awful for u, what a weekend you've put in. 1st the picc line and then the nose bleed, God bless u, my heart goes out to u. Those picc lines can be nasty wee buggers. Do they think the blood thinners have caused ur terrible nose bleed Chippy? 

Thinking about u, hang in there Chippy

Dee
chippy1978
Posted by

Yeah its definitely the blood thinners, the ENT specialist said it looks like it's the actual tumour that is bleeding and that kind of makes sense cause I have always got a bit of blood in the right nostril. 

They have withheld the injections now and I'm waiting to get the ultrasound to tell me whether or not it's a clot.

Cheers Dee.

chippy1978
Posted by

Cheers Hugg

Warrior girl
Posted by

Chippy if its the actual tumour that's bleeding, did they say that's a good sign? It's just I remember having 2 nosebleeds during chemo and I wondered if it was cos the tumour was coming away so I asked them and they said possibly. I'm wondering if it could be the case with u.... 

Dee
chippy1978
Posted by

They didn't say, but the ENT specialist said yesterday that they would have to come up with a more permanent solution for this because it will probably get worse during radiotherapy, and if this is a clot in my arm I will have to be on blood thinners for the next 3 month. 

He said he might recommend a debulking of the tumour or some other stuff that I didn't really understand, but I suppose they will decide the best course of action to take.

I know with my first round of chemo I felt pretty good for about 10 days after but then all the symptoms came back with interest, my oncologist said it seemed like the tumour was trying to regrow between treatments. That kind of makes sense cause my eye started swelling again, I was getting pounding headaches and alot of stinging behind my nose and eye which was always a sign that it was on the move again cause I would get more fresh blood coming out. 

Tell me Dee did the top of your head feel a bit sensitive like it was a bit bruised at all?

Warrior girl
Posted by

Well fingers crossed it isn't a blood clot Chippy, I've no idea what debulking is, but sometimes we're better being in the dark about things. Maybe he means to pack ur nose out.... 

Its soo tough Chippy, you'd think once u started chemo that things would ease and you'd only have to deal with chemo effects. After my 1st round I was able to breathe thru my nose, I was delighted cos it was totally blocked for over a year! 

Chippy I can't say that I did, the chemo I had was intensive and that made my head very fuzzy etc but mostly internal issues, nothing physical. Chippy tell them about ur head, they'll maybe know what it is.... 

Keep ur chin up Chippy, u sound in good enough spirits, how are u feeling??

Dee
Beesuit
Posted by

Dearest chippy. What a situation to be in. I hope you get somewhere with your medical team. 
Debulking is surgically reducing the size of the tumour So nothing to worry about. Just gives the treatment a smaller target. 

Dani
Squamous Cell Carcinoma base of tongue diagnosed September 2018. T2N0M0. 67Gy radiotherapy over six weeks December/January 2018/19
The blog is my personal cancer journey, warts and all. 

chippy1978
Posted by

Yeah I feel ok Dee, yesterday was a crap day and I would much rather be at home with my girls than laying in a hospital with a crossword book, I told you I'm not very techy!!!

It must have been the same for you and probably quite a few people on here. When you get diagnosed and you get a plan on how your to be treated it all seems so regimented and structured but it's all the other stuff that happens before, during and probably after that make it quite unpredictable and chaotic at times.

chippy1978
Posted by

Cheers for clearing that up for me Dani.

You know when you hear stuff that your not too sure about but the last thing you want to do is ask Dr Google!! 

Warrior girl
Posted by

Aww I know Chippy, it can be really crappy! Are u eating ok? And everyone being nice to u? Crosswords are good for passing the time, so are colouring in books, I found that very calming during my hospital stays! Never thought I'd see the day lol. Are u mobile Chippy? Maybe u could get out for wee walks? I don't smoke but I walked around the smoking areas every day, u meet some amazing people.... 

Stay strong Chippy, you've got this

Dee
chippy1978
Posted by

Colouring in book is a very good shout Dee! Walks not possible at the moment cause the hospitals are still putting all precautions in place for covid and shielding certain patients so I'm confined to the room but hey I got a room to myself so I cant grumble. 

I cant get enough of the food, I got the mouth full of ulcers back and a sore throat from all the swabs but I'm so hungry all the time, they think I'm weird in here, I'm devouring everything they bring out and I could go for seconds, I dont think they have ever seen anyone lapping up hospital food like me before, they probably think my wife is starving me at home!! 

Cheers for your messages Dee they keep my spirits up and help me pass the time between eating

Warrior girl
Posted by

Aww Chippy! U should just ask for seconds! They probably throw out what's left, they'd probably be only too glad to see it go to a good home! 

Chippy the ulcers are awful, have they gave u anything for that? U should ask for Fluxocillin, that cleared up my ulcers! 

It's a shame u can't get out for danders but brilliant u got ur own room! 

Has the bleed stopped yet Chippy?

Dee
chippy1978
Posted by

Yeah it seems to, so stopping the blood thinners definitely worked for that but I dont know how they are going to juggle treating the clot and managing the bleeding. 

I'm having an ultrasound tomorrow morning to confirm whether or not it is a clot but I'm keeping fingers and toes crossed that it isn't  cause that would save so much hassle. 

Is that Fluxocillin instant or does it take a few days to work?

Warrior girl
Posted by

Chippy I'm keeping everything crossed for u too. Well it was the doc on call prescribed it for me after radiotherapy, I wasn't in good nick, he gave me 3 bottles which was a weeks course and from what I remember it did clear them up and eased the pain but it took a week. Chippy I also found dissolving two 300mg of aspirin in a small amount of water, just enough to give u a mouthful, and used as a rinse really helped me, its painful to do but if u can tholl it, it'll give u a few hours relief...

Good luck today Chippy

Dee