Head and neck cancer

A place for people affected by head and neck cancers, including oral, throat , larynx (voice box), salivary glands, middle ear, and sinus and nasopharyngeal cancer. Support one another, ask questions, and share experiences.

TORS

Beesuit
Posted by

Heaven knows why I had to rejoin the group....different computer maybe?

This is a daft question and probably can't be answered but here goes.

Does anybody here have a ball park figure for a TORS procedure to remove a tongue base tumour privately?

LindaWT
Posted by

No idea, sorry Beesuit.  Mine was done as part of the Pathos trial.

Linda

Hellebore1
Posted by

Hi Beesuit. Not much H&N cancer surgery done privately as far as I know. TORS equipment quite specialist so unlikely to be in a private hospital. If your own hospital does not offer it and you feel you would benefit, could you be refered to another unit for TORS - but on the NHS?

Hilary

Beesuit
Posted by

Thanks Hilary

Guys and the Marsden and a few others have private units. My PET/ CT scan at 16weeks showed an 8mm spot hot enough to have me in for a biopsy; being done next week. Damn well not having a mandibulotomy spending a crippling year recovering with the spectre of recurrence hanging over me. With a bit of luck I might just have to pay for initial consult and maybe slide over into NHS. With more luck I won’t need it at all. 

Hellebore1
Posted by

Apologies for my ignorance Beesuit! Different down here in the rural Southwest! However, I think its pretty common to have hot spots at the primary site on the 12/16 week scan. I know I did - my tonsil region lit up like a firework on 12 weeks scan, but my team were really confident it was scarring from the chemoradiotherapy and sure enough 3 months later there was nothing to see on new PET. However, if they’re concerned you have to go with it. Fingers crossed big time for the biopsy on Tuesday. And here’s Hoping you don’t need any more treatment.

Hilary 

missFitz
Posted by

Hi Beesuit, I’m sorry to read your posts and I sincerely hope that you are ok? I had my treatment in Charring Cross hospital Hammersmith. The name of my surgeon is Mr Awad. I was thinking he might be a lead for you to get some advice. I had my PET scan under the NHS at the Royal Brompton in Wimpole Street W1 which is mainly a private diagnostic services. I think the PET scan is around £1000 as I remember. Private surgery thereafter would have most probably been done at St Mary’s Lindo Wing 

Every bone in my body is willing that this isn’t what you will need to go through now 

best wishes 

Carrie 

chris2012
Posted by

Hello Beesuit , I do believe that they do this at a Spires Hospital in Maidstone . My consultant Mr Laurence Newman works there as a private consultant ,as well as the N.HS . I strongly recommend him and will not mess you about , He is the top Head and Neck consultant at The Queen Victoria Hospital and Medway Maritime Gillingham . If you type his name on google it will come up . All the best .

                                                                      Chris x

Its sometimes not easy but its worth it !                Click here to find out more

Beesuit
Posted by

Thank you Chris

if the worst comes to it I’ll ask for a referral to Marsden. If they won’t see me on NHS I’ll get a private initial consult to assess possibilities. Off to Hospital today. 

sridhar
Posted by

stmarys might have tors, their website mentions tors

https://www.imperial.nhs.uk/

Beesuit
Posted by

Hilary

i had my biopsy results today and they are clear 

thankyou for being so kind

Beesuit
Posted by

Carrie 

thank you for those bones in your body

my biopsy results today were clear. I’m on close follow up though but very very grateful 

LindaWT
Posted by

Hi Beesuit

Great news.  So pleased to hear that.  Many thanks for updating us.

Best wishes.

Linda 

Beesuit
Posted by

I don’t know what I’d have done without this community. You all deserve a medal. I hope I can contribute in a useful way in the future. 

RadioactiveRaz
Posted by

Hi glad that results are. Clear nice to hear a happy story without the trauma of all the treatment. Go and live your life

Hazel x

RadioactiveRaz 

Beesuit
Posted by

You and your blog have been an inspiration...thank you for your effort and courage in posting it