Head and neck cancer

A place for people affected by head and neck cancers, including oral, throat , larynx (voice box), salivary glands, middle ear, and sinus and nasopharyngeal cancer. Support one another, ask questions, and share experiences.

My sister

Master01
Posted by

well my sister is telling her 6yr old later today , they’ve had good advice from the school and offer of support from them when needed and a book to help explain to Willow .

Now sitting in my garden listening to birds so much thinking my head hurts . I did a shop earlier got lots of bits for my sister , creams , bath   Bits, new towels , gentle mouth wash , puzzle books . Going to give her a care package in her own basket . Things she will need along this journey.

We have a dental assessment Monday we are not sure if this is about Chemo or for RT after Chemo. 

Ive been brought up catholic but omg have not been to church since my teens, I’m planning on going next week to mass , you never know he may listen to my prays x

Anna M
MikeO
Posted by

Not a religious person myself  but I did have a couple of friends praying for me, one locally and one in Atlanta in the US and I was very grateful for that, wherever you stand on religion it sounds like you're going to be a godsend to your sis. My big bro is my closest friend in the World and we've not actually had a cross word between us in forty plus years (fought like cat and dog when we were kids though, ha) and he was always available for me even though he's mostly globetrotting for work, Vietnam currently. He's also a cancer survivor (bowel) so understood better than most.

I'm actually "off duty" at the moment as I'm on holiday but I read your first thread earlier and you got some great advice.

The dental check will be RT related because it can damage the bones in the jaw over time so tooth extraction is difficult due to healing problems. Any teeth that your sis has that are showing signs of poor health, or potential poor health, will likely be extracted as a precautionary measure; I had three removed but all at the back so my "smile" was unaffected. If she needs a lot taken out she'll get free reconstructive work done once she's well enough (and gets to the top of the waiting list, postcode lottery sadly).

Good that you've got the school involved, our youngest was 17 when I was diagnosed and we liaised closely with his college, bit different than with little ones I know but a wise move. My wife and I were still ignorant of how badly it affected him (and his big sisters) until much later; he was apparently at times crying himself to sleep at around 4.00am, then getting up at 7.00 to get the bus, deliberately missing the bus and just walking aimlessly until it was time to get home nine or ten hours later. Broke my heart hearing that. He also went from a "distinction" student to scraping passes. Horrible.

Anyway I'm sorry I don't mean to depress you, you sound like an inspirational person and I'm sure with you and your family's help your sister will come through this. It's unfortunate she saw the thread about the death on here on her first visit, I've been here six years and can assure you they're extremely few and far between, there are many many more positive ones.

Best wishes and thoughts to you all.

 What is a Community Champion?

Metastatic SCC of right medial piriform fossa plus four malignant lymph nodes diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014.

http://mike-oldfield.blogspot.co.uk/

Master01
Posted by

Do you know what today has been a down day but reading what you have written back feels me with warmth , I’m happy the happiest I’ve been this week - thank you .

im glad you’ve clarified the dental assessment makes sense. 

You and your brother sound like me and Katy , there for each other we don’t need to see each other every day or can go weeks but we know our bond is strong , I know if it was me she would do the same

You sound a close family, how’s your 17yr old now ? How’s your wife and you ? Your brother sounds a god send .

off duty ? What do you do ?

thank you for the time replying , this means so much to me , I hope my sister joins it will help her x

thank you enjoy the weekend , it’s sunny here .

Anna M
MikeO
Posted by

Anna my son is now a strapping 23 year old who I picked up from the airport here in Zakynthos on Wednesday so he could join us for the last week of our holiday. Wife and I are fine and back to how we were, she's disabled and I'm her carer and have been for many years but we live a happy and largely private (ten grandchildren aside) life. Situation when I was ill obviously made things complicated but our daughters rallied round.

The "off duty" bit was reference to my role on here, mentioned below each of my posts, that I'm lucky enough to have been deemed worthy of the title of "community champion" with a particular brief to watch over the head and neck group along with .

Many others contribute as much and often more sense than we do but we commit to spend time here so get to wear the prefect's badge, ha.

 What is a Community Champion?

Metastatic SCC of right medial piriform fossa plus four malignant lymph nodes diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014.

http://mike-oldfield.blogspot.co.uk/