Head and neck cancer

A place for people affected by head and neck cancers, including oral, throat , larynx (voice box), salivary glands, middle ear, and sinus and nasopharyngeal cancer. Support one another, ask questions, and share experiences.

newly diagnosed

AnnaLJ
Posted by

was diagnosed on Wednesday and really cant believe it...few teary moments but wondering if its all suddenly going to hit me?....

Anna......
MikeO
Posted by

Nobody can believe it for a while anna, what exactly (if you know yet) is your exact diagnosis/treatment plan? Loads of people on here will be with you every step of the way, they're a great bunch and can talk you through all sorts of worries that you forget to ask about when you see your team. Personally I wasn't teary at start, tried to keep strong for the family but had many moments in the following months/years where I was.

Sorry you find yourself here but it's a very loving and caring place to be, wish you all the best.

 What is a Community Champion?

Metastatic SCC of right medial piriform fossa plus four malignant lymph nodes diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014.

http://mike-oldfield.blogspot.co.uk/

Miss Bee 157
Posted by

Hi there, I was diagnosed back in August 2018. I had been free from breast cancer for 5 years and it had returned and gone to the bones.I was a mess and had been in terrible pain for over 7 months and was getting increasingly worse by the day. I have to say I did not believe the clinical team could ever get my pain or the cancer under control. It was a roller coaster ride for a few months,with drugs, examinations, I did not know if I was coming or going.  I followed instructions and took their advice. My doctor was brilliant and was very supportive. My Macmillan nurse and her team have been marvellous. Although you may feel overwhelmed, take your time and talk to the Macmillan team, they will help you come to terms with your diagnosis. My daughter said "Mum this is horrible news but don't forget, you will meet some amazing people on this journey it wont all be bad and although you feel some doors close, others will open". She has been right. I had to retire from my job as the hours were far too long, and I have started writing a book, have taken up photography, and enjoy my garden. Also my partner got me a dog for company. Take care and eat healthy.   

Sandy No1
Posted by

Hi. It's tough but there is a light at the end of that tunnel. It may seem dim but believe me there is one. I've had surgery and just completed the first four weeks of my Radiotherapy treatment. I never believed it could be so devastating and painful but with the help out there you can do it, beat the cancer and surprise yourself. Chin up. Sandyno1  

Sandy No1 xx
Nicoleta
Posted by

Hi,

i realy don’t know if I am on the right site but I am so scare! My GP called me that he wants to discuss about my smear test results! What can be? Is someone who can help me with an answer? Till Mony I think I am gonna die! I am so scared!

Miss Bee 157
Posted by

Go to the Ask An Expert near the top of the page. I am sure they can help you.

Porridge 60
Posted by

Oh my!  What a lovely daughter :).  It takes a special person to perceive the world as your daughter has, and she has a special mother, a mother that has turned adversity into opportunity.    Wishing you and your family all the very best, you take care too.

Madeleine

chris2012
Posted by

Hello Nicoleta, im afaid you have posted in the Head and Neck group ,if you repost in the Cervical  group you will get advice from people who have maybe been in the same situation . It might not be anything to worry about and just wants to chat about the results , please do not be scared ,you are not going to die ,far from it . You have done the right thing in contacting this site and im Sure if you re-post in the other group you will be given good advice that will reassure you until Monday. Best wishes,take care .

                                                                                                 Chris x

                                                                                           . 

Its sometimes not easy but its worth it !                Click here to find out more

chris2012
Posted by

Hello annalouisejones, I have just read your profile and see you have been diagnosed with tonsil cancer , im afraid cancer does not discriminate and like you I used to think it would never be me . I never realised there was anything wrong with me as I had never been ill in 48 years ,but after a check up with a dentist I was referred to see a head and neck consultant who diagnosed me with floor of the mouth cancer , I was in shock to begin with but as the days went by and things got clearer I started to feel better as I knew I was going to get treated by a great team .I found it best to take each step as it comes and not read to far ahead , it helped me worry less, I think you are over the worst part and you will have a busy few weeks ahead with scans, biopsies ,blood test ,etc so your mind will be on these things . I have not suffered from tonsil cancer but there are people on here who have and im sure ,as MikeO said  will offer their great advice . The only time it might hit you is when its all over , its all so doable in this day and age and im sure you will be ok . Best wishes for the rest of your journey ,take care .

                                                                                    Chris x

Its sometimes not easy but its worth it !                Click here to find out more

latchbrook
Posted by

Hi and welcome to the online community

Getting an unexpected letter from your GP after a routine test can be a very scary time.

I noticed that you had posted your question in ask a nurse but, as it's the weekend and replies can take up to two working days, you might not get a response until after you've seen your GP.

I think it would be a good idea to join and post your question in the group that chris2012 suggested, ie the cervical cancer group. This isn't because we think you have cancer but because there you will be able to speak to others who, like you, will have had recall letters to see their GPs.

To join the group just click on the link I've created and then choose 'join this group' on the page that opens.

Do come back and let us know how you get on after your appointment and try not to worry about it.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?

Saturnal
Posted by

Hi Anna,

you are not alone, this site has been good for me. You will go through teary to "damn it I am going to beat it "moods. I found some Kundelini yoga mantra which work on the throat and mouth chakras helped me relax.  Some folk keep it to themselves but I tald all my friends and cannot belive the support that they gave getting me through this.

Good luck and ask any questions.

Saturnal

Janet since May 1st cancer free hoping the demon will never return
AnnaLJ
Posted by

Thank you...it's good to have somewhere to get your thoughts written down..

and people who know how it feels respond...the very best of luck..x

Anna......
AnnaLJ
Posted by

THANK YOU...it's good to read such positive stuff....I know it's going to be difficult but the support already is amazing..the best wishes to you x

Anna......
AnnaLJ
Posted by

Hello...I was only told last Wednesday and just that it was tonsil cancer...I had scans on Thursday and back this Wednesday to see my plan of action...the very best wishes to you..x

Anna......
Bluebird6
Posted by

HI Anna

so sorry to hear your news, we are midway on the process of my husband being diagnosed with base of tongue cancer and he’s a fit 50 something never smoked etc too like you. So it’s been a massive shock and I get where you are coming from. 

what I would say is that judging by how quickly everything is moving for you with appointments and scans etc is that they are doing everything very quickly which is really good. The wait fir things where we are seems to be a slower here so on a positive note it sounds like you are being well taken care off. 

Hope things continue to move quickly for you and in the right direction.

best Wishes 

L