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I first went to my GP in December as I had a suspect lesion. I had biopsy in January and got my diagnosis early Feb. I've completed all the tests and scans two weeks ago and saw the consultant about ten days ago.
My question is about how long did you have to wait until you finally had the op? It just seems that time is dragging and, although scared out of my wits, I'm keen to get this cancer removed. I swear it's four or five times bigger than when I first started this journey. Is it normal for it to take this long? I'm concerned it's going to spread to other areas. I would ask my Clinical Nurse Specialist but she has left the department and the consultant is only there once a week and a nightmare to get hold of.
How much notice could I expect to be given when a date is finally sorted? There's much to do before I go in and I'm just living in limbo. I can't arrange to do anything more than one or two days in advance because I feel that the call could come and they're going to say they need me in tomorrow!! I'm aware their operation day is Weds and admission days are Tues.
It's a real pain not having that liaison person and my care seems piecemeal and uncoordinated!
Hello Noggin. I am sorry that you are becoming worried regarding your operation date, as everyone else will agree the waiting is particularly hard. As it's almost five years since my surgery some of the dates have become vague, although I do recall what seemed a long wait before I went into hospital .... perhaps about five weeks after my cancer was confirmed.
Once the date had been decided it was then all action with lots of pre-op checks to go for, so time did speed up a little there. You should be given adequate notice as they have to know when the Consultant can operate and there has to be a bed on the Ward for you. Perhaps you can try and see if your chap has a secretary that you can contact .... if not, then try your own GP ?
Hope that you hear something soon, but they won't keep you waiting long enough for the cancer to grow .... take care and keep your chin up.
Hi Noggin, Yes the waiting is sometimes the worse thing - just not knowing when they are going to operate/start treatment is a nightmare. Your consultant though will have a secretary that you should be able to contact. He/she should be able to give you a rough idea - or at least be able to email/phone the consultant, to ask him your specific question. If you can't get the secretary's name from the hospital - just Google the consultant's name. You might get his private secretary - and she should be able to give you contact details for his NHS secretary. I know all this cos I had to do this pallaver for my partner when things seemed to be delayed and he was left in limbo. Let us know how you get on. Ackers x
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