Feeling positive

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On Monday I'm having my mask fitted, on Thursday 2 I'm having teeth out, 15th having my feeding tube fitted, just in time for 6weeks 5days a week of RT, I know it's going to be grueling but hopefully it does mean that I should be cancer free to start the new year, roll on 2025 Grinning

  • Hi Peter I hope you can at some point manage spicy  I’ve resigned myself that I can’t now over 6 years. We’ve just had a mini weekend break in Granada there was so much I couldn’t happily eat. Did play Russian roulette with padron peppers as a tapas  out of 20 peppers only one was hot and hubby got that one. 
    Early days for you 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Dani beat me to it  Relaxed.. but yes, go see your dentist and tell them your situation... you should be able to get it every 3 monthsThumbsup

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • OK thank you I will look into it x

  • Being positive and affirming positive affirmations for got me through this. I made a point of smiling and chatting with the RT technicians and during chemo. It made such a difference to my treatment and recovery.  You’ve got this. 

  • Same here. I see the hygienist 4 times a year. It certainly helps 

  • good luck iam 5 weeks post treatment still have my rig and here if u want to ask any questions good luck xx

  • has your taste come back yet i have just started eating again 2 weeks since i last used my rig but i really miss not tasting anything i have started trying spicier foods to try and taste something i would love to be able to taste my xmas dinner iam 5 weeks post treatment so i know its early days x

  • FormerMember
    FormerMember in reply to dpanky

    Hi dp

    My taste is now about 90%...PEG tube came out in Sept/Oct 2023, started on full meals, minced beef and mash, mac 'n cheese, chippy food, fish and chips etc., taste slowly returned.  plenty of liquids required to wash down food....I could surprisingly taste Guinness alcohol free.... still have one daily.

    Peter

  • thats what i started on mash and gravy mince and big soups iam not eating full size meals yet so still having my 4 fortisips a day they told me if i dont use my rig for 3 weeks it can come out as i have a real hatred for it and refuse them to change it as a change is due but told them once this is out no more is going in lol so its just over 2 weeks ive not used it now but iam now eating anything and everything but only tiny amounts but i really miss having no taste and cant wait to taste the food i can now eat x

  • FormerMember
    FormerMember in reply to dpanky

    I was supplementing meals with 2 or 3 Ensure 2cals daily ....taken orally....hated the stuff, felt it was nauseating....I was very happy when my weight stabilised...my BMI is now in the  healthy range