30 radiotherapy sessions done!

Thanks Dani

I suppose because they say I prob not need a feeding tube due to the radiotherapy to the one side it gives you a false sense of security.  It may only be the one side but all these niggles on top of the tonsillectomy and neck dissection are beginning to build up now . 
Allana 

Hi Allana

I have been using Manuka Honey (from Aldi) in hot water every day whilst having radiation. So far I have not had any ulcers. My mouth still feels manky but I can still swallow.

I am no expert or medically qualified but the honey drink is quite soothing.

Don’t worry too much. If you get into trouble eating you can have an NG tube. I had one for eight weeks. They aren’t pretty but they do the job and come out quickly when not needed any more. Mine wasnt uncomfortable at all. 

Hi ALana Par fir  the course sadly. Tell team on Monday I was given gelclair to help with the ulcers I had them full length of my tongue. Sadly it’s part of the treatment. Always happens on a

weekend as well. Remember on a Friday make sure you’ve enough medication I went downhill more ir less at end of week 3 my ng tube was my lifesaver. Hugs. 

Hazel 

Thanks for that.  I used to have lemon honey water but stopped that after surgery as the lemon was killing me:  weirdly wasn’t smart enough to think about just cutting out the lemon . Doh !

Thanks for the reassurance.  It’s freaking me a little because they have said most don’t need a feeding tube my husband is now super positive about it all.  Makes me apprehensive about mentioning anything x

Hey Hazel

yip, I’ve been reading all your blogs so although I’m kinda prepared I suppose you are always thinking maybe I will miss that stage:

it’s not bad just now so I suppose I’m taking all your advice and trying for damage limitation .

Allana 

Hi please do not struggle your husband means well I’m sure but it’s your cancer and your body. If you need the feeding tube you need it. I credit mine with me having  a fairly  quick recovery. Until you cant swallow something as simple as a sip of water it’s hard to comprehend. I hope  you don’t need it but don’t struggle please. Treatment s hard enough. A few do manage but they are the minority. 

hugs Hazel. X

Thank you for reading my blog I had only minimal radiotherapy to my non cancer side but end if week 3 I couldn’t maintain hydration or nutrition The thing with n g tube they tend to be out quicker than  feeding tube in tummy. 
we’re all here to help. 
glad blog helping keep referring to it just rennet we are all different. 

Hazel x

I know there is no malice and I understand the thinking behind ‘radiation to one side so the other side should be fine to allow you to swallow ‘ BUT it was only one tonsil out and only one side with neck dissection and I lost the ability to swallow . Only for a short time to be fair .

im still at work at the moment but realising that its all changing and as you all say on here .  Need to listen more to our bodies and stop trying to plough on x