Scan date

Turi said:

Can the people that read the scans tell the difference between real/false hotspots ?

Only up to a point. 
Avid scans have a scale of heat called SUV and if this SUV is high then  malignancy is a possibility. The only way to tell is by biopsy but some trusts rescan a few months later

Inflammation gets in the way.  

Hi your consultant eill discuss the scans  I was 18 weeks after treatment finished 
tuesdsy will soon be here  just keep busy and you’ve come this far. 
hugs H xx

Thanks Hazel and Dani once again,

Turi

Yes they certainly can as I had a hot spot caused by an infection in a scan back in 2021 and they reassured me as to what they were seeing.  Rest assured if they are uncertain then they will investigate further.

HibTuri just keep busy tomorrow Tuesday will look after itself. The consultant will have discussed the scan in a mdt meeting. Just remember you’ve come this far. Night night

Hazel 

Hi Turi, I too had a T4 tumour and some lymph node spread. I had a GP exam and dental infection treated in the March and April 2021 which both failed to detect my cancer. I was referred by another GP in May by which time I could see the tumour.

I was then whisked through the system with scans, biopsies, RIG tube and mask fitting followed by 6 weeks of radio and chemo. CT and PET scans in December showed that I was clear.

You are definitely not a coward as you are justified in being scared. We all are, and to some extent that worry will never fully cease. However, as you can see on this forum, many of us are successfully treated and living normal lives. It will be tough but trust in your MDT and the advice and support on this forum.

wishing you all the best with your treatment.

- John

T4N2cM0 diagnosed June 2021

Hi John,

Sorry I worded my original post wrongly I'm going for my pet scan results tomorrow finished treatment in Oct 23.Did you your throat take a long time to heal as the tumour was bigger ? My throat is still inflamed and by the end of the day pretty sore.Taking liquid paracetamol 4 times aday.GP says I've written myself off.I just must have that type of nature.Anyway what will be will be tomorrow and here's hoping I'm back with good news.

Thanks for your reply,

Turi

Hi Turi. Good luck for tomorrow we will be with you in spirit. 

hugs Hazel xx

Hi Turi. If you haven’t been seen yet. Good luck. Fingers and toes crossed. 

Hi Turi,

“Did you your throat take a long time to heal as the tumour was bigger ?”

I think that we all vary in our response to treatment and I did cope OK with the pain and managed with paracetamol and occasional co-codamol. In respect to recovery, I don’t think that it took any longer for me to recover.

I hope that the PET scan went OK.

- John