Post Treatment Scan Results

You poor thing. I can only imagine how awful your journey has been for you. What a insidious disease this really is. Let’s hope that’s the finish of it for you and that you continue to be well. Many thanks for taking time to reply to my post. 

No problem, and thank you for your good wishes.  I’m lucky in that I’m looked after so well by the Head and Neck MDT at my local hospital, and hope that everyone gets that same level of care.  Good luck to your husband with the immunotherapy treatment, I hope it kicks the cancer into touch! 

I’m really sorry to hear this. This sounds very similar to what’s happening to me. Biopsy has today confirmed I have malignancy in lymph nodes (mediastinal and hilar). I’m now being referred back from respiratory to HNC to see what the treatment plan will be. 

Have you had biopsy results Mark? 

Hi Dani. Yes I got them in consultation today. Confirmed malignancy in mediastinal and hilar lymph nodes. Back to my head and neck oncologist now for treatment (modality TBC). Thanks for asking 

Mark, there are really good results with immunotherapy and there are a few trials out there adding cancer vaccines. I have a contact who has been on Nivolumab for five years so hang on in there

Hugs from me as well Prof Vin Paleri at the Royal Marsden is having really good results with his trials. 
Plus there’s a vaccine trial fir HPV reoccurrence s. As well as immunotherapy.

1. Hazel x

Thanks, as ever, Hazel and Dani. I’m staying as hopeful as possible and know I’m in extremely good hands at the Christie.

Hazel where are you able to find out all this info about trials and new drugs etc? I would like to read it myself. Thanks 

Mostly by word of mouth through contacts made here and via the blog (Hazel too)

Chicadee16 said:

where are you able to find out all this info about trials and new drugs etc? I would like to read it myself. Thank

CRUK have a database search but it's pretty useless 

CRUK

MARSDEN

There is a US clinical trials database that lists all the trials anywhere but it is difficult to navigate

https://www.clinicaltrials.gov/

Your oncologist should be aware of all the UK trials. 

Sadly it isn't an easy search