Diagnosed yesterday

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Hi all

I'm new here and was diagnosed yesterday with Neck Squamous Cell Carcinoma.  I had an MRI yesterday and have to have a PET scan too (I have no idea what that is.) 

I have survived two Malignant Melanomas in the past, but I was a lot younger then and more or less took it in my stride (I was pretty ignorant of the very real possiblity of death as an outcome then . . . thankfully.)

However, now I am a LOT older and more conscious of my own mortality I am absolutely terrified.  I have no family I can talk to and my darling hubby is a bit of an Ostrich, so I don't talk about my fears with him in case he thinks I'm overreacting.

Thanks for 'listening'.

Hazel x

  • very well.. a few 'small' niggles.. dry mouth, a bit of lymphoedema/stiff neck.. and fatigue is still a problem, but I'm not a spring chicken, so I can't bounce back like a young 'un anymore.. lol.  

    early days for me still, so hopefully things will improve over time..

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • I know what you mean, I'm no spring chicken either, it's harder when you are older isn't it.  I find recovery even from something as simple as a cold takes a lot longer to go now.  Fingers crossed you will continue to get better and better day by day.  Hang on in there.

    Hazel x

  • Thank you Ray.

    Hazel x

  • Thank you Peter, everyone has been so friendly and helpful on here!  I feel that at last I have the support I need now among people such as yourself who knows exactly how I am feeling. I am actually 72 and so, I worry a lot about my own mortality (probably too  much that is good for me) and feel that it could mean my death sentence (as I managed to dodge the bullet twice already.)  I'm sorry, I know I'm probably being a 'drama queen', but it's how I feel.

    I will try to stay positive.  Thank you so much for your kind words of encouragement.

    Hazel x

  • Hi Hazel!

    Yes, I had my biopsy done nearly 2 weeks ago now, and then I was asked to go in and see the consultant yesterday and there were 3 in the room. There was the main consultant, a second consultant (who gave me another nasal endoscopy) and a cancer nurse.

    My diagnosis was Left Neck Squamous Cell Carcinoma (possibly left tonsil primary) was what it said on my assessment plan.

    I had an MRI the same day and I have to have a PET scan sometime (they haven't given me a date or timescale for that and then they want to see me in clinic next week to discuss the results of the MRI and talk about treatments.

    I am so pleased to hear you are doing well and that you are through the other side.  Thank you for your support.

    Hazel x

  • Hi Hazel , you have come to the right forum as these people are truly inspiration. My hubby had mandibular surgery and rt and i found so much comfort through this page. Your hubby might seem like an Ostrich but probably hes way of coping and wanting to support you. Wishing you all the best and stick with these true warriors you will be fine xxx

  • I am actually 72 and so, I worry a lot about my own mortality (probably too  much that is good for me) and feel that it could mean my death sentence (as I managed to dodge the bullet twice already.)  I'm sorry, I know I'm probably being a 'drama queen', but it's how I feel.

    Oh please don't apologise. I was certain I was going to die and even more certain this was going to kill me when my oncologist told me he would cure me! Not that I didn't believe him...through all this I did as I was told by the professionals who do this every day and I trusted them...but I didn't trust my own body.

    I organised my affairs and wrote notes down for everybody including minute details about running the house for my husband. It occupied my mind for long enough to realise that actually I might have a chance after all. I'm medically qualified though not a doctor so I eventually stopped feeling sorry for myself, gave me a kick up the backside and got on with it. 

    That's not to say the sorrow completely disappeared and there were a few midnight meltdowns in the bathroom away from the family. But you need these times of breakdown. They are release. Then you pull yourself together, take a deep breath and move on....a day at a time.

    You'll do it. Faith.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Hazel 

    trust the team and the treatment. It’s not easy you will have good days and bad days but eventually the bad days are outweighed by the good days. It sounds like Dani says HPV driven tumour and they do have a very very good response to treatment so  they pet  ct scan and then your results next week when you’ve had a plan it does, settle your head down. The port ct scan is the final picture in the jigsaw gives them something to refer to as well.
    we’re all here for you.  Plus like Dani says we’ve all had your thoughts. I nearly only nearly showed my hubby digital banking !!’ I left notes in Christmas decorations but was sure that with 6 months of diagnosis I wouldn’t be here. Well 6 years on here I am 

    hugs 

    Hazel ( great to meet another one I know only 2 others ) although not the best way to meet a fellow Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi bridgetb

    Thank you, yes, hubby is a real rock, but I don't like to put everything on his shoulders (he is a paraplegic) but I know he cares deeply and just doesn't like to 'discuss' things too deeply.  I think deep down he is probably as scared as I am. 

    I got a letter today from the hospital for me to go and see the consultant Thursday 22nd.  We will know more then.

    Thanks

    Hazelx