Received a diagnosis of a metastatic SCC in the paratoid gland (primary SCC was on my temple on the same side) after MRI, CT and FNA. Yesterday was given a treatment plan of Total paratoidectomy including sacrifice of the facial nerve, and a neck disection. With radiotherapy to follow.
I was told that the cancer was in my lymph nodes in the paratoid gland and until the lymph nodes in my neck are removed, we cannot be sure if they have cancer cells. Surgery is next week.
At this point would the consultant know the staging of my cancer? Having done some research it appears it's the CT that determines the staging. Should he have told me? How will I find out my longer term prognosis, or are these all questions that will be answered after surgery. Or do I ask the consultant to confirm answers to them now.
Hi KTM 78,
I have recurrent Acinic cell carcinoma of the parotid so had a radical parotidectomy with sacrifice of the facial nerve, and neck resection., with radiotherapy planned this month.
just to say the surgery went well, and I surprisingly felt very little pain afterwards, so was relieved. The loss of facial nerve is a bit of a blow, but you get used to taping an eye closed at night, taking small bites of food, and drinking through a straw. A price worth paying, I think, to be liberated from the cancer involved. I got a static sling to lift my mouth which worked well for symmetry, and they can also help with eyelid weights for closing the affected eye.
Not looking forward to the radiotherapy, but the staff are great, and I hope the side effects are minor!
Wishing you all the best for a successful outcome.
Jacques
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