Hi, I am new here I was diagnosed with tongue cancer in May. I have had a partial glossectomy and neck dissection. I am about to undergo Chemoradiation which involves 6 cisplatin and 30 radiotherapy sessions. I have a place to start University in September. I am not new to the university I am transferring from one course to another. They are willing to let me start later as I know the uni and have done a lot of what they do in the first few weeks.
Am I a bit ambitious expecting to be able to go back to uni (they do 2/3 days a week in uni) my treatment starts 26th August and ends 4th October. Or is this doable? I feel if I have this to look forward to it will help me get through the treatment and help with side effects. The uni are willing to work with me and support me for as long as needed. They also understand if I want to defer until next year. I just feel I will be so bored if I have nothing to do for a year.
Thank you
Hi Amy
Chemoradio is a very tough gig, I finished in early June 2023 late August 2023 before any real improvement, some do get off relatively lightly with less side effects....I did book a luxury hotel for October just to have a target to aim at ... made it and enjoyed it....
Take care and best of luck
Peter
Hi Amy. Welcome.
I have a place to start University in September.
my treatment starts 26th August and ends 4th October. Or is this doable?
I’m afraid not…. sorry
You are going to be pretty ok for the first two weeks them symptoms will ramp up considerably till two to three weeks after you finish. Then it will likely be another six months before you can consider taxing your body and especially mind at university
Do stay with us you’ll have lots of questions as you go through this
Peter is right it’s a tough gig and most of us go through a few weeks not being able to eat orally and have to take nutrition and medication via some sort of feeding tube
Do have a look at The Young Tongues who are a charity with a very active social media group for folk going through glossectomy and CRT
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Amy
Whilst you may feel physically fit your big issue is going to be "cancer fatigue". We are all different, but you may find that you are easily exhausted and your brain does not function on all cylinders for some while after treatment ends.
In your shoes (it is many years since I left university, but I still am active in "thought intensive" work) I would be talking to the university to defer for a year.
Hi Amy,
Welcome to the group so sorry to hear about your diagnosis.
Irs such a tough one as we are all unique from diagnosis-treatment plan-the ways our bodies tolerate the treatment and how we recover …. but like Dani said you may not will be able to start in September . I thought I would be fit and back to work after treatment but sadly no chance .Im a Counsellor and neither my brain or body would be able to cope .
Concentrate on you embarking on treatment make sure you have support around you and dont be afraid to ask your Cancer Nurse Specialist anything they can lease with the rest of your medical team.
Our bodies get frazzled through this treatment and fatigue is a huge issue for most of us .
Or sounds like your Uni will work around you .When you feel well enough you can prepare for your course I still struggle to read but audio books are good and I’ve watched nearly everything on TV and netflix .
This is a really challanging time for most of us physically mentally and emotionally…. it takes a lot from us and our bodies and minds need time and rest to recover .
All the best for treatment
Debbie
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