Struggling emotionally

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Hi all

I’m 3 months post treatment and I’m not sure if this is a normal part of recovery but I’m really struggling mentally and with my emotions. I’m very restless and weepy.

I’m also weaning off morphine at the moment which I’m sure isn’t helping.

I feel like I’ve no energy or inclination to do anything and it’s really getting me down.

I am trying to have a more positive mindset but it’s not easy. 

I’m still struggling with eating and I’m reliant on fortisips. Still only managing about 1500 calories which I’m sure is not enough. As this is a daily battle I’m sure this isn’t helping me either but it’s so hard to eat when you feel nauseous and have no appetite.

I went back to work a few weeks ago, just part-time but this week I’ve struggled to get out of bed.

Is this normal? And will it get better?

Thankyou

Suzanne

  • WOW.. going back to work? Go see your doctor with help to get off morphine.. I had a real problem with withdrawal symptoms.. Don't try to rush it... Rest, let your body mend, get yourself fit.. then think about work... 

    As Hazel has said..  'It’s a marathon not a sprint.' 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Thanks Loz, I spoke with my health centre yesterday when I realised what was happening. I was reducing too quickly. I’ve now slowed that down to hopefully minimise the withdrawal symptoms.

  • Big hugs Suzanne, I am 3 months behind you (due to finish RT on Friday) as others have said it's a marathon not a sprint.

    I hope things improve for you and you regain some sense of normality (whatever that is??). 

    I will also have to return to work at the 3 month mark ( I live by myself) - bills to pay and all that Frowning2 

    There are a lot of warriors on this forum who have had lived experience and have come out the other side - just give it time.

    Take care

    Dawn

  • Thanks Dawn, I hope your treatment goes well this week and best wishes for your recovery.

  • Good evening Suzanne, this does happen to some people, you are suffering from depression, i went through it, i did not want to do anything but stay in my bed, including eating. It sounds as if you are trying to rush things and not let your body recover in the end my speech and language therapist told me to see my Dr which i did and I was diagnosed with depression and was put on a course of antidepressants which helped also i went to see a Macmillian councillor. You will recover from this but it takes time, coming off your meds is also not helping. Please listen to your body and maybe have a word with your Dr/GP, all the best.

                                                                                 Chris x

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • Hi Suzanne 

    Just adding to what all the others have said you are doing amazing. I had a complete breakdown before I was due to start my RT I was trying to be too strong then it all got on top of me. You will definitely get there just be kind to yourself and let your body heal.  I started seeing a coaching therapist at our local cancer hospital it was life saving for me. Also the Macmillian counselling sessions and buddy system brilliant support. As you can see I had every kind of support going!  See no evil  I hope your work are supportive x 

  • A few months ago, also around the 3 month mark, I told me team I felt a sense of PTSD.  They assured me this is very normal.

    i only managed around 15-1600 calories but didn’t lose weight so they were happy. The important thing is to keep your protein up. I’ve ditched Ensure and now buy Huel protein black supplement. It gives me the proteins I need and I feel loads better. I also drink their greens. I started this on Friday last week and I can already feel a big increase in energy

    Motivation is rough and I’m finding  that as well   Before I was very disciplined and did a workout every day.   Some  days I just walk and ignore the resistance training but then realise how important it is for recovery and force myself to do something even if only 20 minutes.

    I’m 5 months post treatment  .  Good luck 

  • Hello Suzanne

    Just to echo what everyone else has said,  you're doing brilliantly, maybe pushing yourself too hard? It's good that you're getting help coming off morphine - I had trouble with that too. Maybe ask if they can improve your nausea meds?

    It definitely does get better, just give it time. 

    Sending love & strength

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story

  • Thanks Chris for sharing your experience. I have been to see my GP and been prescribed antidepressants. Hopefully they help.

  • Thanks Tongue123. I’m lucky I work with family and they are extremely supportive. I’ve also signed up for counselling and the buddy system. Hopefully that will help me also.