We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

one year on ....

Posted by

Yesterday was my last day of Post Op ECX , and exactly 1 year since this  journey began....

here it is....step by step.
endoscopy 18/5/2019.......biopsies takes from oesophagus....told 99.9% certain cancer .....await next communication and steps. 
CT Scan     23/5/2019.......
follow up     29/5/2019 ......Confirmed CO T3,N1, M0  case transferred to Oxford.
MDT meeting  3/6/2019.....positive feedback from MDT...pathway considered "curative" with Surgery 
Pet Scan 12/6/2019........... positive result from PET, Cancer has not spread anywhere else for now..
pre op Laparoscopy checks 14/6/19 - all good 
Laparoscopy  25/6/2019.... biopsy from liver, all clear.
pre op physiotherapy review  8/7/2019.
Myocardial Perfusion Test 11/7/2019..... All Good
oncology meeting 19/7/2019. - will start 3 cycles (21 day per cycle) of ECX.
bloods and urine tests 23/7/2019.
pre chemo meeting 2/8/2019
ECX chemo cycle starts 5/8/2019, hand and foot problems, BP problems , got through it 
ECX chemo ended 4/10/2019
pre op assessment  10/10/2019
CPET 10/10/2019
Pre op Physio review. 15/10/2019.
Post chemo Pet Scan 17/10/2019 
Pre  Op physio sessions starting 18/10/19 weekly until surgery..
surgery planned for 13th Nov - cancelled.
Surgery Now 20th Nov. - minimally invasive oesophagectomy , 10 hours.
post op discharge 2/12/2019.
Surgical clinic review 09/12/2019 Best Possible surgical outcome- all margins clear and 32 lymph nodes removed clear also.
oncology review 3/1/2020 
gastroscopy with dilation 6/2/2020. 20 mm dilation of the pyloric sphincter, also treated for oesophageal candidiasis.
Post Op ECX  begins 2/3/2020
chemo stopped due to Klebsiella infection -  Antibiotics 14/4/2020
Chemo restarted - 27/04/20
last ECX tablets - 18/5/2020
Posted by

It's a long journey but you're certainly out the other side and doing well.  Keep up the good fight and all the very best.  Jayne 

Posted by

Well done. You’ve come a long way and I hope all those steps taken become big strides as time goes on. Stay focussed and positive.

Crystal x

Posted by

what a journey. what a strong man #respect