Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

What to expect

Lindianns
Posted by

Hi everyone I haven't been on for awhile but have a few questions hoping someone can help, I am in my third week of chemo/radio combination and only have two weeks left then the operation so can anyone tell me how long after treatment will it be before I have my op? I keep expecting to lose my hair but I still have it will it come out or am I one of the lucky ones but my head is itchy all the time is this a sign its going to happen. I am trying to stay positive but its really hard some days had a really awful Christmas not being able to eat or drink I really hate this feed tube now feeling very low as you can probably tell. I hope someone can maybe answer some of my questions. Thanks for listening.

Johnyboy1957
Posted by

Hi I had 5 weeks of chemo and radiotherapy I was very lucky no bad side effects after it after 4 weeks I could eat anything 5 weeks later op in hospital for 8 days had to go back in a week later had infection in kidneys then septis 12 days later had staples removed surgeon sent message I had to wait for him then told me everything ok 100% cancer free . I was diagnosed in Feb 19 op was end of July still recovering but getting there slowly have been back twice to have attached but eating good now everything looking good c surgeon in Jan for check up hope everything goes smoothly for u good luck hope this helps

John

Keep the hope
Welshpoppy
Posted by

Hello Lindianns

Sorry you’ve had a rubbish Christmas and I’m afraid I haven’t got the answer on how long you have to wait for surgery as I was offered either radical chemo/radiotherapy or surgery for my cancer and I chose the former. Hope you’ve not reacted too badly to the chemo/radio, I had a really bad reaction (sickness and stomach pain) on the first round but after a change of delivery to IV chemo 24 hrs over 5 days as in patient for the next 3 rounds the sickness got under control. It’s hard to stay positive some days but be assured lots of people have come through this and are behind you. All the best for the rest of your treatment.

Carol 

Lindianns
Posted by

Thank you for taking the time to listen I am on my third week of chemo/radio all been good up to now, but this week all the side effects have kicked in mood swings, tiredness well I sleep for england. Everything sets me off  crying but I am staying positive knowing it's part of the course, it's a great comfort to know people understand . I am hoping it won't be too long before I have the operation but hey it will take as long as it takes the operation is scary but reading what other people have said helps me to understand what I am in for. I pray after the operation I will be free. I can't wait to be able to eat and drink again I've been three months now so really am looking forward to that. I really wish you well with your recovery and pray your checkup goes well. Kind regards Linda x

Johnyboy1957
Posted by

Hi Linda hope everything goes well for you I feel very lucky and good now waiting for next appointment with surgeon hope to everyone

John

Keep the hope