Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

Post oesophagectomy

christyb
Posted by

So glad you have come through it.   I too feel really scared. I am stage 3 but don’t have a treatment plans yet as still awaiting biopsies in lymph nodes.  It’s a very scary journey.  Good luck to you 

Christine
Johnyboy1957
Posted by

Hi everything should be ok all the medics are really good in my hospital in Liverpool followed everything they said and come out the other side good luck with everything

John

Keep the hope
Cheeky scouser
Posted by

Hi Christie sorry for your news. I am not going to lie you are right it is a scary journey BUT not one that can't be beaten. All I can say is stay positive as silly as that might seem at the moment and take all the advice you get from the professionals and you will get there. 

Good luck and stay positive 

Cheekyscouser
christyb
Posted by

Thank you.  Just concerned the time it is taking to get appointments.  I know I’m not the only one but selfishly only worried about me.  Just want to get on with the treatment but been waiting for 2 weeks and heard nothing .  This is for biopsies in lymph nodes will then have to wait fit that results.  Been diagnosed a month and no further forward.  I am being positive but have my days .....

Christine
Cheeky scouser
Posted by

Hi Christine I don't think for 1 minute it's being selfish I can remember feeling similar were I wanted to know everything NOW but unfortunately it doesn't work that way. You will find there will be lulls of information and contact with anyone and then everything just a rollercoaster of appointments and the hard part waiting for results. Try not to put pressure on yourself too much. Stay strong but also allow yourself the bad days your only human.

Hope this has helped in some way 

Good luck xx

Cheekyscouser
BrentS
Posted by

One of the medical team once told me that they would try to progress things as quickly as possible but no one was as on top of things better than me, so if things weren’t happening as expected then chase it up.

I used to chase up my specialist nurse to progress things and give me updates. It worked for me!

Counting the days, making every day count.

Brent