Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

Difficulty in swallowing anything

Florian
Posted by

My brother has been diagnosed with cancer of the oesophagus and has been unable to swallow for several months.  He had a stent put in but it still takes him a long time sip by sip to take pain or chemo meds.  My sister-in-law has tried GP for help but always comes up against a wall.

In theory he has a MacMillan nurse, but I don't know what that means - should she be the one to give him advice and help?  I hate to see him so weak and dispirited.

Florian
pode
Posted by

Hi there I hope your brothers pain has settled down with the stent! My mum is in a lot of pain with her stent, she says it’s like someone ripping out her insides xx

Luv Chox
Posted by

Hi Florian,  My husband has the same diagnosis, within weeks of being diagnosed and following scans, xrays and blood tests he has started on flot chemo,  which will be followed by surgery and more chemo.   He hasn't had to have any stents put in because he has only suffered relatively mild swallowing problems, his main symptom was feeling bloated with acid reflux pain.  We found the best advice and our first port of call was his cancer specialist nurse, appointed by the hospital.  We were given a business card with phone numbers and instructions to call whatever the problem or simply to answer questions about the treatment.  We were also given "Red Card" with emergency numbers to call, which we have used when we were concerned about side effects he was suffering and he was able to be seen immediately for re-hydration.  So my advice would be, bypass the GP and tell him to contact specialist nurse, suffering in silence should not be an option, Good luck and positive vibes X

The smallest act of kindness is worth more than the greatest intention
Florian
Posted by

Thank you so much for taking the time to give such useful advice.

It sounds as if there is a very good system where you are.  I think.it must vary from place to.place.  and bypassing the GP seems to.be the best as the oncologist must know a lot more about the treatment. 

I hope your husband is doing well and thanks again. 

Thanks for the vibes!

Best wishes 

Florian 

Florian
Florian
Posted by

Many thanks for your good wishes, pode.  It does seem to.be very uncomfortable with the stent.

I hope your Mum's stent settles down.

Thanks everyone for your support.

Best wishes

Florian

Florian
Luv Chox
Posted by

Hi Florian,  You are welcome, always here for you.X

The smallest act of kindness is worth more than the greatest intention